Sorry for the late Marvelous Monday post! It was quite the weekend here… thus I will be brief!
This week I am thankful to be a part of such an amazing group of women. I am a Rhody Blogger, and there is a smaller group I support called the Rhody Bloggers for Good- they are amazing women. Truly inspiring. This weekend they hosted (with La-Z-Boy Warwick) a sit-a-thon for Belle Bradley, who is battling cancer and her mom, Melissa- who is battling not just Belle’s illness, but the medical bills associated with the disease. I was blessed to be a part of the festivities, donating things to the yard sale and sitting for a few hours tweeting, instagram-ing and Facebook-ing the event. Together, $10,000 were raised to help the Bradley family!
My dwarfism fact of the week brings up our week ahead! Many children with dwarfism see genetic and orthopedic specialists, among many other types- there are very few to actually specialize in skeletal dysplasia, however. In Addie’s case, we drive over 300 miles each way to see Dr. Bober and Dr. MacKenzie for genetics and orthopedics, respectively. It’s a lot of driving, and we do it twice a year- but at least it’s not a flight away- and we are so thankful that Addie has the best care possible from two of the most amazing doctors. There are many children out there who have to travel much further than we do, or don’t have any access to a specialist at all. For all we have and all the properly trained doctors we have, we are so blessed! We are heading to Delaware this week, in fact!
Lastly, my random of the week: With my baby girl coming up on one year, it’s amazing to see her growing into her own person, but also taking on traits of both Dave and myself. Here she is doing her first instructional vlog on how to blog and her first typed piece below! It feels good to have such a talented baby!
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