Marvelous Monday

Monday Monday Monday Monday Monday Monday Monday Monday Monday Monday Monday Monday Monday Monday Monday Monday Monday Monday Monday Monday Monday Monday Monday Monday Monday Monday Monday Monday Monday Monday Monday Monday Monday Monday Monday Monday Monday Monday Monday Monday Monday Monday Monday Monday Monday… Just wanted to reiterate… it’s Monday.

With that news… what are YOU thankful for? Me? I’m thankful for this:

auntie and addie

I have a best friend that rivals blood. She is my sister. She never asks me why or why not. She never asks me if or how. She never asks. She is just there. She is there when I am happy, when I am sad, when I have no idea what I am. She is there. This is a beautiful call-out to Ashley, for always being there when I least expect that I need it. I am thankful for you… and Addie is, too.

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My dwarfism information is super cool: YOU CAN BABY WEAR. Well… with precaution. And not everyone. And that can really hurt.

When I learned that I could not wear Addie anymore, I broke down. I hated knowing that I could not have her strapped to me at all times. I loved the idea of baby wearing and I needed her with me. Because of this, I carried her, applying pressure to her lower back and pushing in the trademark kyphosis. Addie… with the will of the strong Worth women before her… keeps her back unyielding-ly straight:

straightbackThen she got stronger. And with her sitting on her own, we used the Bjorn. And it was amazing.:

See, for us parents who are told “no”… we look for the exception. We look for the “yes”. Here it is!

babywearingone]

We also use the Ergo baby carrier on the back, rarely. This carrier offers no spinal support, but Addie keeps her back strangely straight, and the carrier offers a better hip placement than any other on the market. We use this when front carrying is dangerous (i.e. cooking) and Addie is NEEDING to get up (which is rare).

ergoI want to say this: your decision and what you do with your child should be a collaboration between you and your doctor. Our geneticist says one thing, sometimes I feel another. We talk. It is our responsibility as parents to find the best treatments and answers to our questions and then go from there. Us? We love A.I. DuPont and will be seeing Doctors Bober and MacKenzie this week! Most of the time doctors say NO to wearing your “achon” baby, but find out if YOUR child (specifically) is strong enough for wearing- either before or after they are sitting/standing/walking on their own. Advocate for yourself!

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And my random? Just a reminder:

NDAM Groups Cover Photo

Happy Monday, Reader!!!

5 Comments

Filed under Achondroplasia, Marvelous Monday

5 Responses to Marvelous Monday

  1. How can you not want to hold her all day?
    Heather @ Kraus House Mom recently posted…10 Things I Miss About My Kids Being LittleMy Profile

  2. LOVE that top picture! Those cheeks were just made for smooching on!! Speaking of Bjorn, I scored one at the RI Kids Consignment sale last week! The seller priced it at $55 but then donated it when it didn’t sale. I went for the Dollar Dash and picked it up for 10%. $5.50 for a Bjorn!! I did a happy dance right there at the table. I only wear my little guy when we are out and about. With 4 older siblings he rarely lacks someone to hold him! ;)
    Stephanie Kay recently posted…Do you have a realistic food budget?My Profile

  3. Love all those pictures! She is just adorable!
    Nicole@runningwhilemommy recently posted…Quick UpdateMy Profile

  4. I love your Monday reflections, information, love and STRENGTH… just like Addie’s! xo!
    Sharon – MomGenerations.com recently posted…Best of Beauty: Tarte Power CoupleMy Profile

  5. Love the emphasis on MONDAY. My Monday was a great one. Tuesday, not so much. Your sister sounds like a dream. And Addie in that backpack? I mean, how cute is she? Such a strong and beautiful girl like her mama!

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