Tag Archives: Addie

The week of One Months

I just posted about a conflicting celebration of one month HERE- rejoicing the making of history and mourning the loss of innocence. Here I am again, with a less discordant post: My baby has been a year for a month.

In that month she has moved mountains in her own way… including physical ones that seemed forever in the making. Addie can sit up. Feel free to clap for her as you read this- every time she finds herself seated squarely on her bum, she claps too. Saturday, the day after THE ACCIDENT, I looked over to see what she was playing with, and there she was. Upright. Shocked, I yelled for Dave in the next room. As she sprawled back out on her belly and made her way to him, she landed in the doorway of our bedroom, looked over her shoulder, pushed herself up onto her feet, through her arms (and their 15% bend) all the way onto her butt. She looked over again to see our mouths hanging open. The day after the accident I felt like I’d aged 100 years and Addie was proving that no one would stop her progression.

In this month she’s also decided that she’s pretty much done with the bottle, but will ask for milk with sign language. She drinks water from her cup like it’s going out of style. Everything that can be held up to her ear is a phone and she must say “hi” into it, including sun glasses. If it can be put on her head, she will try- life is made up of wearing many hats, after all. My father-in-law blew her a kiss one afternoon… she blew one back. We’ve never blown kisses before, so I have no idea where that came from. When we leave the house, she waves at everything. If there is a man with a beard, she must grin at him and turn her head away. She loves to brush her hair. She begs to get down from my arms and walk holding onto my hands (OUCH! on my back and heart). When music is on, you can bet she’s dancing. She loves to pat people on their back when giving hugs. “Uuuummm” means she’s hungry… and you don’t want to mess with a hungry baby.


Since turning 1, Addie has become a toddler. She’s no longer a baby, although she will always be my baby. Every time I come to the computer I scroll through pictures from when she was born, her firsts, the holidays… and I always land on one of my favorite photos ever:

@Dimery Photography

@Dimery Photography

When Michelle Dimery, of Dimery Photography, mentioned cake smash I was jumping up and down. Not only was she Addie’s newborn photographer, she was once a bride of mine and has become a Mommy Mentor for me as I watch her grow as a mother of 2.

318187_416530611692102_170146979663801_1720148_545913344_n

At Addie’s smash, Michelle (and her beautiful and talented office manager, Courtney), were building the background to the smash: A Chicka Chicka Boom Boom extravaganza with coconut trees and the banner that Lisa from Heavenly Things for Angels on Earth made us. It was a clean and simple set- perfect for Miss Addie to eat cake on! Michelle’s new studio is a wide open space filled with handcrafted props, and beautifully designed by herself and her husband (a master of carpentry). With Addie outfitted in the diaper cover I made, Michelle took over 50 photos that melted my heart.

Cake Smash Collage

After the smash, Michelle helped me wash Addie off and filled a beautiful bucket with soap and water and she took pictures of her bath, like my favorite above. Addie stood up (holding onto the sides) by herself for the first time in that bucket… we were both so shocked neither one of us got a pic! The looks that Michelle captures always amaze me. I know the way a mother looks at a child is not a fleeting moment- they might be “easier” to find… but the way a child looks at a parent- the loving, mischievous, down-right confused looks. Those are fleeting. I was dancing around trying to make Addie laugh and she was just looking at me like I was crazy, her face a beard of bubbles. I will never forget this photo shoot and I am so blessed to have these memories of Addie’s first year coming to a close and beginning a whole new chapter of our lives.

544718_590374057641089_80280583_n

WATERMARKEDIMG_9696

WATERMARKEDIMG_9699

WATERMARKEDIMG_9721 copy

WATERMARKEDIMG_9733

WATERMARKEDIMG_9734

WATERMARKEDIMG_9764

WATERMARKEDIMG_9875

WATERMARKEDIMG_9850

WATERMARKEDIMG_9825

WATERMARKEDIMG_9819

58510_585263514818810_949238080_n

WATERMARKEDIMG_9913

WATERMARKEDIMG_9906

WATERMARKEDIMG_9890

If you’re interested in the best newborn photographer, Dimery Photography, please contact them at: 401-580-0947 or DimeryPhotography@gmail.com

8 Comments

Filed under Family Life, Reviews

Marvelous Monday

Hello Reader! I hope you had a wonderful weekend- and a Happy Mother’s Day to all you moms out there!!!

Normally, I focus on being thankful, talking about something that has to do with dwarfism and something random. This week I want to just share what I am thankful for and explain a bit more.

I am thankful for life.

There are a lot of things that bring me to this, most of all, just being a mom. I never thought I would be graced with a child. I lived a teenage existence that left me wanting little from life, except to end. I was sad, lonely and mean. Mean to myself, mean to people around me. I was scared,  which made me more mean. It was hard- almost as hard to live as to admit. But then, it all began to change until, finally, Dave found me. Fast-forward a few years and I am slowly making bonds with my in-laws and procuring friendships from all walks of life. And best of all, I am Mom to one beautiful, talented, brilliant, HAPPY little girl! She doesn’t just light up our lives, she brings a smile to everyone she sees.

So the look on her face that I saw Friday afternoon was not one I will soon forget.

We were headed to the Omni Hotel in Providence to pick up my race packet for the Cox 5k on Saturday. This was going to be my PR 5k. My first race since August 2011, when I was just pregnant with Addie (following a heart breaking miscarriage). This race was going to define me. My mother-in-law had been spending almost every evening with Addie to allow me to train the course- mapping out the hills with my legs, retraining my muscles to take long strides, lead with my toes, control my breathing and water intake. I was ready. I was under 11-minute miles and was sure I could pull 10 minute miles on race day.

CRASH

It all came to a screeching halt about 250 yards from exit 18 on I-95 North. As traffic gently slowed, I applied pressure to my brakes. When he hit, I had no idea it was coming. I jammed my foot into the brake to avoid being tossed further forward in our lane. I straightened myself from the hunched position as quickly as I could, hearing Addie’s shrill scream from the back. I searched all the mirrors in my car. I leapt from my vehicle, screaming at the young man who hit me to, “Call 9-1-1. There’s a baby in my car!” Not just any baby. My baby. My whole world was strapped into her car seat with the most wild-eyed look I’d ever seen come across her face. The multiple attempts at a lumbar puncture when she was an infant- doctors jabbing her time and time again in her spine- could not rival the fear in her eyes. I grabbed my cell phone from the diaper bag in the backseat and dialed emergency. I cried into the phone, pleading for them to hurry. All I could think was Addie’s spine. It wracked my brain. I was seeing white. It was hot, traffic was flying by. No one stopped- in fact, people honked for us to move. “THERE’S A BABY IN THE CAR!” I screamed as they whizzed by. I felt the driver who was planted in the hatch of my SUV back-off. “STOP!” I boomed at him as I quickly went about snapping pictures of our vehicles. He slammed on his brakes before his car broke free from mine. He was scared and apologizing. “I just looked down for a minute…,” he stammered, phone in hand. The damn thing looked like it was attached to his palm. He was scared. He saw Addie in the backseat. Every apology that came through my window from his lips scraped at my soul. I called Dave, “We were hit. An accident. I’m getting her to Hasbro.” “I’m on my way.” We hung up- the hot air of the day buzzed around me.

Car Accident

It only takes a second to kill someone.

We pulled off to the side. He came to my passenger window again- he was sorry, so sorry. The only thing I could do was ask if he had his insurance information with him. He ran back to his car and handed it to me through the window. I wrote everything down on the paper I keep in my glove compartment. I spoke no other words except, “She has a spinal issue. Pray.” I didn’t mean it as a threat. I meant it as a request. Please pray this does not bring upset to her body- but I’d said it through swallowed tears and clenched teeth. “Is this all your info?” I asked as I handed it back. “Yes.”

My father-in-law showed up. Dave was en route from Weymouth, running out of his office with a “my wife’s been in an accident,” and nothing more. Behind us on the highway I could see where the trooper was that was supposed to be here. I could see the rescue that was meant for Addie. There was another accident. It was hot. Addie was bright red from the heat and scared. Trying to see what was happening, every car that went by causing her eyes to flash open wide. A fire engine pulled over to wait with us. Multiple cars drove by. People on cell phones- talking, texting.

It only takes a second to kill someone.

“I only looked down for a second. Just to see…,” he said again and again. Then his mother showed up yelling in Spanish. I watched his head bow down as she pointed at the crushed pile of green and yelled. He was sorry, and I was sorry I was not able to offer him forgiveness. But, it only takes a second to kill someone. When you look down at your phone at that text message that couldn’t wait, you could change someone’s life forever. You could kill someone’s mother, child, father, brother, son, cousin, aunt, uncle, niece, nephew, friend. You could kill a teacher, doctor, student, the woman that makes your coffee everyday, your local bartender, a man you’d never met and never would. Because, it only takes a second to kill someone.

My head was pounding, I tried to get Addie to drink some water. Where were the cops? Where was the rescue? Finally. We spoke to the officer separately. I filled out my witness statement. “I can’t offer you an escort because we only have 3 cars out today. I’m sorry,” said the trooper. “Thank you for coming. Stay safe- I’ll take her myself.” I looked up at him. “Thank you- you both take care,” he replied. I was in my car and pulling out onto the jammed highway before I could say goodbye to my father-in-law. I drove the speed limit, which only made my head hurt more. My teeth clenching in their respective roots- each one pressing into my jaw so hard I was beginning to feel dizzy.

Instead of picking up my race packet and heading to Pinkberry for some treats, I was bringing my baby to Hasbro Children’s Hospital. “Don’t fall asleep, Addie!” I yelled into the backseat.

We pulled in to the valet parking area in front of the ER where Dave was waiting. “DO NOT take her out of the car seat!” I barked. Be gentle. Bring her in slowly. I was breaking on the inside. She passed the initial exam and we were told it was OK to remove her from the seat. Vitals, normal. Initial physical exam, normal.

Then we were in a room. We waited. The happiest baby passed her neuro exam and flirted with every doctor that walked by (of course). She was checked again. Calls were placed to Dr. Bober, her geneticist. Again, she was checked. She crawled and stood. She was happy… as usual.

AtHasbro

She was alive.

She continues to be monitored at night and we watch for signs of pain. For signs that compression is becoming an issue.

But what about the race? Dave drove us to the hotel after Addie was discharged to get my packet. I limped into the Health Expo with my hospital bracelet on, wondering if I was even capable of running the next day. Weeks of training- feeling like a million bucks, complete with healthy knees and a strong stride had all come to a halt as I felt each muscle twinge from my knee to my ankle like knives stabbing at the limb. My right leg felt useless.

“Do you know your number,” a woman asked from behind the 6 foot table. “203,” I responded. “Michelle Martin… Mar… Martinnnn…” “Martinka. Yes.” I grabbed my pins and moved to the left where I was given a shirt and my bag. I wanted to check it all out. Was there a onesie for Addie or an armband for my phone (which I need!)? I have no idea. I limped back to the waiting car full of my family.

Packet Pickup

I pinned my bib to my shirt Friday night, pumped full of Tylenol and water. “I don’t know if I can do this,” I said, looking at Dave. “Then don’t,” he replied. He was right. Everything hurt. My head was blurring my vision and my legs weren’t working- he had to get my contact case from the bathroom for me. I was broken.

But so are thousands of leukemia patients everyday. The people I signed up to help. The people I raised money for. Those people hurt everyday. I run for Team in Training and I would not let them down.

I woke up Saturday morning and took 3 Tylenol. I laced my shoes up and put on my shirt. I was running to honor Belle Bradley. I was running to remember my Dad and my cousin. I was going to finish.

I didn’t fail, but I didn’t succeed. Unless you’re a runner, you won’t get it. Running it wasn’t enough. My teammates were SO supportive and all the love at the mile 2 water stop urged me to keep going, but there were lots of tears as I pushed myself up the hill. People die from this, I repeated to myself. Dad help me, I begged. Everything hurt, and it was only a 5k.

LLScox5k

I was angry all my training had been stripped from me for a godforsaken text message.
I should have been thankful for my life- I smiled at the thought- but reeled inside.

I jogged a bit (I had the most amazing coach by my side)… but I walked a lot and limped a bit, too. My 30 minutes slipped away. They became something closer to 35. The soreness throughout my body raked up my spine, splitting my body down the the right ankle bone. I was doing this to save lives, but I didn’t feel much like I was living well on my own. My race I’d worked so hard for was taken away… it only takes a second to kill someone.

I grabbed ice from the med trailer at the race, shared a banana with Addie and was driven home by Dave. I showered and packed myself into the car and headed to the ER (the only place that will take “3rd party insurance”). X-rays showed no break, but the doctor gave me a referral to an orthopedist and an air cast and advised me to stay off it. I guess he’s never been a stay-at-home mom. I plan on seeing a chiropractor to try and alleviate the headache that’s going on day three.

I spent Saturday night getting my tattoo for Addie (a blog in itself), my first in 5 years, and eating dinner in Newport with my loves. Mother’s Day was beautiful and I got to spend it with two very important women: my mother-in-law and sister-in-law.

mothers day pictures

I am thankful for life.

This was supposed to be a race-recap. A thrilling ride for you to take with me about making it back from a near-bedrest pregnancy to a PR. But in place of an age-group first, I’ve amassed a collection of hospital bracelets.

IMAG3150

There’s no making this OK. Instead, it’s a PSA: Put down your phone. Save a life.

As we pulled into the driveway from Hasbro, I had to snap this photo. She was finally sleeping. Safe. Home.

Homefromthehospital

10 Comments

Filed under Marvelous Monday

Pretty Neat

There are lot of things we worry about as parents everyday… when you have a child with a difference or special needs, there are other things beyond the usual suspects that wrack our brains, pull on our heart strings and force us into some sort of judgement about ourselves that we don’t deserve, but can’t help but endure. Then there are those things about our child’s difference that make us joyful.

I have a friend with a young son who is autistic. He doesn’t like to be hugged or make eye contact, he will touch fingers with you but not shake your hand or give you a high-five… but he can play almost any piece on the piano if he has the music in front of him, without practice, perfectly. On the days when everything seems to be falling apart, my friend points to the grand piano she got at an estate sale 4 years ago, and her son plays her soul into a calm state. We don’t get to talk much- she is in Arizona with 3 kids- but when I see a picture that she (rarely) posts, it brings me so much joy to see what the lens captures. Her kids in the sand, playing at the zoo, first days of school, last days of summer, and solo concerts from her only musical child, consisting of everything from Billy Joel to Bach.

In fact she just posted one of the pics yesterday. It made me think… even though I have a few hard days, there are A LOT of things that bring me back to center… and most of them are not Earth-shattering, they’re the little things that can go overlooked if I don’t slow down a bit and take them in.

On the days where I cannot seem to get a hold of anyone to explain a bill, or what a certain test revealed, they seem endless and unrewarding- except for the child I perform these tasks for… but most days, I feel so blessed to have such a joyful baby. Playgrounds are still not the best thing for us: skinned knees on wood chips that are, sadly, not edible, and the lack of small toys makes most trips, truthfully, not fun. Most “play zones” are geared to younger kids who don’t have many motor skills, or older kids who do… not the older kids who just don’t have it, yet- Addie gets frustrated and trampled, so we stay away from those places, too. We play in parks, in the grass with toys. We climb over rolling hills and make our way to random swing sets. And, one of the neatest things I’ve experienced as a mom so far: we do all of these things in last year’s wardrobe.

SameOutfit

Some days are really hard- no matter who your child is- and it’s nice to remember it’s the trivial things in life that can bring us the most happiness, the biggest belly laughs and the deepest sighs of relief. When I can’t see much through the clouds in my head, I can see this: Addie is growing, making leaps and bounds, and showing us all: She is fierce (and adorable)!

AddieRINewMomsConnection

16 Comments

Filed under Parenting

Listen to Me: Marvelous Monday

I’ve grown up, bought a house, married, gotten a puppy, had a baby, cooked a few thousand meals, given up part of my identity to be known as Mom or, more accurately, Addie’s Mom, I decided to stay home (at least for now), and I have a handful of friends I could not get through life without… then I met my fellow Rhody Bloggers and that changed. I met people that I didn’t want to live without. Women with stories that made me cry til I was dry, laugh til I was crying, buy products I never knew existed and teach me how to be a better Mom, wife, friend and human. This week, and every week going forth, I will be thankful that I was able to be a part of Listen to Your Mother. I didn’t make the show (you can read about that HERE), but I got to see it, live the moments each woman bravely shared- whether it’s a life lesson about grocery shopping with kids, how we struggle to overcome our insecurities, having emotions we wish we could control, about our mothers shaping us just by believing in what we could do- I lived it. I sat between two new friends of mine, as we each shed tears, shared laughs and then drinks after the show- it was an experience I will treasure always. Thank you to Carla and Laura for producing the best first LTYM: Providence!

Me, cast member Jackie Hennessy of Venting Sessions, Carina and Tera of Girl Gone Healthy

Me, cast member Jackie Hennessy of Venting Sessions, Carina and Tera of Girl Gone Healthy

We are doing very important work with our pens... like math.

We are doing very important work with our pens… like math.

New friends and snuggle buddies <3

New friends and snuggle buddies <3

 

My random of the week is… GET IT DONE NO MATTER WHERE YOU ARE! If you’re not following me anywhere but here, maybe you haven’t been as inundated as you should be with my Girl Gone Healthy posts. Well, that sucks for you! Tera is an inspiration as a woman, wife and mother- not to mention a warrior. This lady gets it done, no matter what. I’ll keep it brief, but the next time you say you can’t get your workout in because you have to get the food shopping done, you darn well better park FAR away from the front door. This is Tera this weekend, in heels, walking the 4 flights of stairs (she did it 3 times) to get a little workout in. And stairs? They’re no joke.

In heels, 4 flights, 3 times. Get it done.

In heels, 4 flights, 3 times. Get it done.

Lastly… dwarfism! Lots of people have pointed out Addie’s belly, so much so, that I began to get concerned. As I have done many times before, I turned to my POLP (parents of little people) friends and asked: is that normal? I kind of loathe the word, but truthfully… we all have our own normals in life. But I digress… here is some information about why there is a belly on the little beauty (besides the fact that she eats very healthfully… and completely). Children with achondroplasia often have lordosis, or sway back. This makes the belly look like it’s sticking out more. A smaller chest also gives the appearance of a large tummy. Other factors: smaller space leaves the belly the place where many achondroplastic children show weight and it’s super common that after eating the belly is visibly more full!

As I wiped my forehead of worry-lines, I looked over at my sweet girl. That belly so many like to point out: it’s beautiful. It’s ticklish, it holds many kisses, it flattens out against my body as we snuggle in the morning, it rounds to my hand when I carry her facing out, and fits right underneath my chest when I carry her to me. I love that belly.

Belly I Love

**AND WE HAD A FIRST THIS WEEK… JUST WANTED TO SHARE: Addie climbed up a step!!!!

24 Comments

Filed under Marvelous Monday

Love Thyself

As a friend of mine stared at my recent status updates, she emailed me: Bitch.

WHAT?! I replied.

You’re running again! You don’t need to.

…the conversation continued. Mostly about our bodies and how she “hates” her post-baby figure. I turned it, briefly, to running- I do need to. I don’t run for the awesome legs, sun-kissed nose or black toenails. I run because my sanity depends on it. To sum it up: I was a high-risk pregnancy- partially due to miscarriage and partially because of surgeries I’d had. This left me sidelined during 32 weeks of my pregnancy (I ran my last half marathon just a few weeks pregnant… that would explain the intense exhaustion I felt after). All during Addie’s gestation, I worked 60+ hours a week- sure we needed the money, but more-s0, I needed to take up my time. I often stayed late, finishing projects just to avoid seeing my Asics waiting for me at home. At 20 weeks I was rear-ended on my way to work, and that set my back into a spiral. Up until that point, I’d had NO pregnancy pain… from that point on it was pain all the time. I explained all this to my friend and more… I ended it by telling her to take a walk, by herself, with music that she likes, or in a new place. As she goes along, run for a minute, jog, walk- do it for 30 minutes. Tell me you don’t feel better. Running isn’t for everyone, but a family walk that incorporates a jog, a good walk/run routine, or just a brisk walk on your lunch break- if not for your thighs, for YOU- can make a world of difference in your attitude.

So, yes. I do need to run.

Besides that… when I look at my belly now (one year postpartum), I’m not overwhelmed with joy. I have never been a skinny girl. Thin, yes. But I was made to run up and down a field, wielding a stick of composite wood or alloy and leather strings. I was made to run through those skinny girls with my kilt flying high, showing off the spandex shorts beneath. My cleats sounding like a 100 horses, as I slam my feet into the ground. Sometimes I forget that.

Senior Year, lacrosse

Senior Year, lacrosse

Early on in my pregnancy, I went home for my sister’s baby shower. She weighed herself on the super-accurate scale my parents have. When the number popped up, I forgot about everything I just said above. I was so angry at myself for being so big. My sister, at 7 months pregnant weighed what I did before I got pregnant. We are the same height (give or take half an inch)… we are not the same build, and you guessed it: she’s the pretty one. She is blonde haired and blue eyed. She’s thin with lean muscle- not paltry. She’s strong with a long face and a big smile and beautiful skin. I am muscular, and when I’m not in shape, I look round, bulky, dimply. My calves are huge from a decade of dance and gymnastics. My shoulders are broad- good for being a hockey goalie. My face is round and my blue eyes shine from behind long lashes and a shock of dark hair. I have my Mom’s face and my Dad’s body… my sister is the opposite parental combination.

It was then, as she stepped off the scale, I began to take belly pictures.

Through the years I’ve had an obsession with my middle. My legs are always questionable. I wish they were leaner… even with all the abuse I put my knees through, they still carry me… but my belly has always been toned (not well defined, just flat)- until I had a baby.

My belly when we decided to conceive, age 27. Me at 21, after being tattooed and me at 25 on our honeymoon.

My belly when we decided to conceive, age 27. Me at 21, after being tattooed and me at 25 on our honeymoon… And a week post-Addie.

So, I write all that to share with you my mantra and what I try to remind myself of daily: “You are beautiful.”
[Now, you SAY IT: "I AM BEAUTIFUL"]
I remind myself… You gave birth to a beautiful baby girl a year ago… it’s not easy to take care of yourself with daily life, let alone when you have a baby. The house is always clean, the dog always walked and fed, the baby clean and smiling. The cabinets are organized and you’re up-to-date on your work. All appointments have been made and kept, the correct paperwork is filled out and sent. All phone calls are in and logged (fighting insurance companies is a full-time job). It goes on from there.
Give yourself a break and love it.

I’m a bit softer… but every extra pound, every little stretch mark… that’s Addie. Sure I’m down a few pounds from pre-baby… but it’s not the same. It being my body. My limbs feel heavier, my butt a little wider, my arms rub as I trudge up another hill in the park. What hasn’t changed is the rush, the surge, the high I get from logging miles. It’s not easy to get out there, but once you’re on the road- it’s hard to stop.

Let’s love our bodies, ladies everyone! Those 20 minutes you think are not going to make a difference, will make a heck of a difference compared to 0 minutes. Get out there and do it. Walk, jog, run, play catch, skip with your kids, play flag football with friends. Get active. Get healthy. And love yourself, love your mind, love your body.

I hope (when we’re ready) I carry just like I did with Addie- (all in the front):

Large photo: Exalt Photography Back and side pic: 37 weeks

Large photo: Exalt Photography, ~31 weeks
Side and back pictures: 37 weeks

For now, my middle is soft but my mind is strong. Run for sanity- reap the benefits of body:

Momma Belly

Momma Belly, May 2013

I hope you know how beautiful you are.

It is so hard to love yourself, especially when we have SO many pictures of our youth reminding us of the times when nothing jiggled! It’s a different love. I think of my pre-baby body as my first love, but as I evolved into wife and then motherhood, it’s a more mature love. A respect for what I’ve done in life and all I have yet to do.

Maybe someday I’ll love myself without trying, but until then… I repeat my mantra in anything but a full-length mirror!

8 Comments

Filed under Parenting

Marvelous Monday!!!

Could this weekend have been anymore perfect in ‘Lil Rhody? It was beautiful in the Ocean State- I hope it was where you are, too!

This week I am SO thankful for resilience. I have been blessed to have two of the most resilient people living under the same roof as me! Miss Adelaide had her one year check up Thursday afternoon, and with 3 shots and a finger prick (lead and iron), she was happy as a clam (are clams really that happy?). After coming home from the appointment, she took a brief nap, ate a hearty lunch and came to the Local Author Night at Barnes & Noble in Warwick!

With author Jackie Hennessey

With author Jackie Hennessey

Days later, we are still fever free and happy as ever… who could be sad with an awesome play set Grandpa put together??

LittleTikesPlayset

And then there is Dave. A little back story: Dave was NOT a morning person when we first started dating. He was often at his shop at 12:04pm everyday, which opened at 12:00pm. But, somehow about 6 months before we were married, Dave started to make me a hot breakfast every day before work. Sometimes this meant him getting up at 6:30am to cook… then we got a puppy and I started running at 5am- yet, Dave still got up and figured out the time to have coffee and breakfast ready for me. This isn’t about breakfast, in fact, there is a big change coming in our life that makes breakfast look a bit less important than my daily coffee requirement (not a baby), but his sacrifices have afforded us much in life- whether it’s a few hours of sleep, letting go of old dreams or selling his most prized instruments- I’m blessed to have such a man.

Mountain Man <3

Resilient and resourceful <3

When it comes to dwarfism I certainly explain what I can, but recently it’s come to light that people have a need to know what to call Addie. Here is my definitive answer: Addie. It’s not rocket science, it’s just her name. While I appreciate so many friends, acquaintances and strangers wanting to be “PC” (hey, I’m the CPL!), there is no need to describe her as a Little Person. She has a form of dwarfism, but she also has a beaming smile, a head full of strawberry blonde hair, a million teeth coming in all at once, the sweetest little voice, dance moves that would shame those on DWTS, and a love of hugs unseen before. While I will focus on dwarfism awareness, please know that there is not one person out there with dwarfism who should ever be defined by their genetic difference. Little People does not describe intelligence, emotion, desire or ability. LP can run triathlons, be doctors or school teachers. You see, Little People are just people. Until you describe me as your tattooed, new mom, ice hockey and football fan, half Catholic half Jewish, blue-eyed, 5’8, size 8 1/2 shoe wearing friend with brown hair who drives a Ford, you can just call Addie Addie.

Lastly… my random of the week: Mapmyrun app. While I usually use the MapMyRun website, I found that logging in the app and tracking my run (instead of remembering where I went and when I left and when I returned, etc.) as I was doing it gave me more accurate results, I was able to see a map of where I was, which prevented me from getting lost at Roger Williams Park, and it was EASY! It’s the overrun runner’s app! I still have my daily runs that I know in my sleep (and I time with my Garmin), but when I go off my beaten path, it’s nice to know that I can map it easily and not have to question where I am! :)

Have a beautiful week, Reader!

10 Comments

Filed under Marvelous Monday

A letter from Mom

Dearest Girl,

I have been scrolling through your pictures almost every night. There are thousands. Literally. When you were born, learning to nurse, taking your first bottle, your first bite of food (avocado!) and almost every food thereafter, your smiles, first shoes (knitted owl slippers), snuggles with Daddy, tummy time…

I love looking at them all.

I took one just yesterday and could not believe it was you.

Your smile is beautiful (and the two upper teeth just popped through that morning)- you’re not showing the discomfort from teething or the shots you had just last afternoon. You’re just perfect. In your Gap cropped jean jacket (thank you Aunt Val and Uncle Greg) and jean skirt and mix tape onesie (thanks Auntie Becky), sporting your Old Navy loafers… You’re my big girl. I don’t like to think about it, but you’re more like a toddler everyday.

GrownUpAddie

You point at what you want, you maneuver yourself all over the house, you find things to help you sit up and pull yourself to standing, you sleep in your own bed, brush your hair and teeth (!) and, best of all, you give me hugs and pat my back whenever I pick you up. Somehow you’re a black hole, always saying “mmmuuuuummmm” (yum) to tell me you’re hungry, and thankfully- avocado can always ease your hunger (mama’s girl, for sure!).

You are becoming a beautiful young lady. Thank you for being you, sweet girl.

Love,
Your Proud Momma

1 Comment

Filed under Dear Adelaide

Rock-a-Baby *review*

I’d heard about Rock-a-Baby from friends when Addie was born. Puppets, interactive play and song, other kids and parents were all intriguing reasons to sign up, but we didn’t. The problem wasn’t what I was hearing, but what Addie wasn’t. I have written A LOT about Addie’s hearing, from THIS post about the ear in general and the testing we went through, to THIS post about scheduling her surgery and THIS one about how well she did getting tubes, but what I haven’t written much about is how important music is to me and our family. I did write one post HERE that touched upon how music has shaped me, and a little blurb about Dave’s music shop celebrating their 10 year anniversary, but I don’t think that tells enough of our story. I’m sure someday I’ll get to it, but for now just know that there is a soundtrack to my life. I define myself and my phases solely by music and the tapering of my jeans.

As my interest in Rock-a-Baby peaked and Addie’s hearing seemed SO much better, I emailed founder Marc Trachtenberg about his experience with kids who have had some hearing loss and he offered to let us sit in on a class to ensure Addie would be comfortable (some sounds still startle her a bit). I was super excited because after the class we were heading to see our team in Delaware and I was sure the excitement would make Addie a bit sleepy for the long ride. Was I right? Yes!

During the class, Addie could not get enough of Benny’s guitar (such a Daddy’s girl), and she loved Melody (and Kate, too!). I was so happy that the piano didn’t scare her, as I am a hammers and strings kind of gal (and my drums, of course!). As the class progressed, Addie made her way to the middle of the floor for kisses from the puppets, to play with bubbles and to (almost) get trapped in the London Bridge, which was, of course, falling down! She got to shake, clap and give out her smiles for a whole hour. Marc gave us the Rock-A-Baby CDs and Book as we were leaving and we made plans to come back. As we made the 350 mile drive, we listened to the CDs whenever Addie was awake- so much so that Dave and I find ourselves singing the songs when Addie is asleep!

CDs and Book

Our second week was just as great- and it was Addie’s birthday. She was sung the special birthday song, Birthday Baby, which she knew well from singing it in the car! Addie is also learning from the CDs and I catch her clapping to Clap Your Hands. I love the class, the tunes made for babies, but well composed and performed, but most of all, I love seeing Addie enjoy music. All of a sudden, in the middle of class last week, Addie started to bounce. Perched between my outstretched legs, her spine began to hunch and straighten, I peaked around to see her face, which was lit up with a beaming smile.

My baby had rhythm. She was feeling music.

I knew my emotions we written all over my face- I had to look up to prevent the tears from falling. Music is so important to learning, expressing and processing- I am so blessed to be able to share that with Addie. The bubbles are one of Addie’s favorites, but just seeing her enjoyment makes everything about the class and experience we both get each week my favorite!

Enjoying bubbles on her birthday!

Enjoying bubbles on her birthday!

I keep one CD inside with her book, and one in the car to rock out to! Her ears may not be perfect (we go to the audiologist in a few weeks and then back to the ENT), but I know that she is experiencing the sounds that please her (she loves to listen to Gotye) and some of those that shock her (she gets over stimulated by the complexity in Dave’s old band the Sweetthieves) and those that are just not her taste (she falls asleep during anything classical- which is what I listen to when I write). I’m excited to begin our next session and watch Addie learn more about music and all it will offer her in life. Thanks Rock-a-Baby!

I was compensated for my review, but all thoughts are my own and are not swayed by outside opinion.

9 Comments

Filed under Community, Milestones

Marvelous Monday

Hello Reader! I missed you last Monday- BUT the site made a seamless transition to its new host and here I am!

As many read yesterday HERE, I lost my father 15 years ago. This week, what I am thankful for is my niece Hadley. She is in my life because we were meant to have a special bond- a connection only an aunt can have with a child- to keep each other smiling when we forget how. I took Hadley aside as her party was winding down and we had a little talk. She smiled at me, and drooled a bit- to most it would seem that she didn’t understand me- but her smile came just as my eyes began to tear up and she let me hug her to me. It was a brief moment, but I am so glad that we had it. I love this beautiful girl!

Hadley's Party

My random of the week is date nights! I agree everyone needs some time without their children, but I don’t know that I’m ready for it. We went out to The Grand Tasting for Eat Drink RI festival with tickets that we won.

EATDRINKRI

It. Was. Amazing! Not just because we felt like we were just dating again (getting a little day-drunk will do that to you!), but because we hadn’t been out in so long and it wasn’t forced. I felt comfortable, albeit nervous, about leaving Addie, but I knew that she was old enough to communicate her wants and needs well enough to my mother-in-law and that she would have fun. Lots of my friends need to go out, but that need is not something I feel yet. Maybe it’s because I don’t let myself- it’s not like we have excess cash to go to dinner or the movies, but truly, I think it’s because Dave and I don’t get much family time and that’s the time we want to spend together. We dated and got married and had 3 “single” years together- in our first year as parents we wanted to be parents as much as we could! They’re only in babyhood once- we will be married forever <3 Thank you to Jen at Keekoin for the opportunity to have a beautiful afternoon together and my in-laws for taking such great care of Miss Adelaide!

Addie at InLaws

Lastly, my information about dwarfism is an update on Miss Addie AND a little bit about why we travel. We went to Delaware last week and had a great check-up (and first visit) with Dr. MacKenzie. Addie didn’t get the full skeletal work-up (thanks insurance company), but she did have two spinal views and an x-ray of her lower limbs (read: legs) and all of her “pictures” looked great!

As I’ve mentioned before, having the proper care for children with skeletal dysplasia is very important. While many children are perfectly healthy, monitoring their bone growth, as well as their overall health and development are very important factors to having a healthy adult life. Just like an average height child with a difference, parents want to bring their children to the person who knows best about their child’s condition- whether it is thyroid or behavioral, a hearing loss or vision problem, tippy-toe walking, etc. Addie goes to the closest doctors who specialize in, not just “has patients” with, skeletal dysplasia. Thankfully, the closest doctors are also on the medical advisory board for the LPA- which makes me feel all the better about her going to them. Dr. Bober (who was away on personal leave this visit) is her geneticist, and Dr. MacKenzie is her orthopedic specialist. When we saw him, Addie was in great spirits and loved playing on the table (i.e. eating paper).

Exam

We travel 350 miles (each way) to Wilmington, Delaware to A.I. DuPont Hospital, where we see these two specialist who work as a team, every six months. It’s amazing to see Addie’s progress and the amount of work that goes into proper care- all the questions, the physical exams that are done so gently- using minimal invasive tests like blood work- in favor of research and a thorough physical exam, the listening and true concern for each question we have, and making sure that we are comfortable with the care plan given- all make Dave and I so happy we are able to make the drive. We are lucky that my parents live about 80 miles north of the hospital so we stay with them on our visits, but there is a Ronald McDonald House there, too, and I know so many families who just love how welcome they are there. The hospital is pretty great, too, because right outside they have a beautiful playground with lots of places to sit and enjoy the weather! Addie LOVED playing after her appointment and got to go on a swing for the first time! …Of course for our picnic, we went to the local Saladworks (YUM!) and got our favorites to enjoy :) I wish Rhode Island would open a location!

Playground at DuPontEating together

This was Addie’s first visit to MacKenzie, and he saw that her kyphosis is still there, but he is hopeful that it will straighten itself out as she learns to walk and hold her spine straight, and her legs look great, too! I have been SO worried about her ankles, as they seem to bend out- I’ve never seen another baby with ankles like Addie’s- but he told me that that was normal. I have learned to laugh when I hear that word, but in this case it made me smile. Now I know that it’s normal for my achon baby to have ankles like this- sometimes it’s strange to be normal :)

Thanks for catching up with me! I hope you have a beautiful week ahead and a Marvelous Monday, today!

8 Comments

Filed under Marvelous Monday

Another Year

It always happens this way. April, that is. T.S. Eliot had it right for so many years: April is the cruelest month And then my sister got married, and Addie was born and I was sure that it would just be better. Magically. But it’s not. Thankfully, it’s not worse, either. It’s just different.

Fifteen years. You’re still gone, Dad.

During my pregnancy I was sure that Addie would be born on the 21st, and not her due date of the 25th. I just knew that she would make the day better, but when my water broke on the 15th I could not have been more relieved. And then this babe arrived on the 17th!

12 Month Collage

I didn’t want to have to share my grieving day with my child. I wanted that day to be selfish. To cry and curl up into a ball if I wanted. To run 10 miles, or stay in bed all day. I like the 21st to be a day I can fall apart.  I turn into an angst-y teenager and cry as hard as I ever have.


But then, a different plan was made. My best friend’s daughter Hadley was born.

Ashley and I didn’t meet until after the births of our girls in our RI New Moms Connection group, but as Ash introduced herself and week after week went by of new stories about our lives- we grew to see each other as sisters. We share many of the same stories, trials and tribulations of life. We’ve both lost a parent, grew up outside of Rhode Island, are married to men who work A LOT and we both love red wine and champagne! As we’ve gotten to know more about each other, there are things we don’t agree on and things we do. We call each other on our wrongs, and celebrate our rights. What struck me the most about Ashley is Hadley.

New Years!

New Years!

Whenever the thought of Hadley’s birthday comes up, I tear up. I’m sad our girls are getting older and I miss the groggy days of midnight feedings and remembering when I last had my cup of coffee, but more so, I’m just sad. Like I said, it doesn’t get harder as the years go by, but it doesn’t get easier. There are days that I am an independent woman- I don’t call my Mom, or text my sister or my brothers. I go about my day without intervention as Mom and Wife. Then there are days when my water heater shuts off, or the lawn needs to be mowed, or Addie claps her hands… and I want to tell my Dad. There are plumbers and my father-in-law and my Mom loves to see Addie pass each milestone. But I want to call my Dad and hear his laugh, and see his brown eyes soften as only a father’s do. I don’t just miss him for me anymore, I miss him for Addie, too.

As Ash and I drink our wine, or talk about schooling, the newest Twilight, or have an intense conversation about our dream houses, I know that she, Hadley and Evan (too!) were brought into my life to help make each year something to celebrate. For that, I am thankful to whatever higher power (or not) you believe in.

For this day, I have two letters to write…

Dear Hadley,When I first met you and your mom, you were so small and perfect. You’ve blossomed into a curious and silly little girl and I am so blessed to be your aunt.
I always thought April would have to be just pain, but you and Addie have taught me that’s not all it will be. Meeting you has brought me light on a day where there was only darkness. I’m looking forward to the many years ahead where the memories in the forefront of my mind, always stemming from 1998 are replaced with memories from each of your birthdays. The pain will always be there, I know, but you, baby girl, are my angel- sent to be in my life to help heal some of those wounds.
I wish you the happiest of days on your first birthday celebration and a lifetime of wonderful days like it. I am proud to be a part of your family and to have the opportunity to honor life on April 21st. I’ve been waiting to do so for 15 years.

Hadley Paige

Hadley Paige

Love, Aunt Chelley

Lastly…

Dad,
I won’t take up much of your time, but I hope, somehow you already know all this.
In the past 15 years I’ve shed rivers of tears, run uncharted miles and battled my mind with each passing 21st. I cry for me. I cry for the little girl who lost her father, but this year, I cry for us. I cry for the baby girl who will never get to meet you.
I don’t regret having such an amazing man in my life- I’m thankful you are my Dad, but I wish that I’d never felt pain like this. And I wish it would stop repeating every year. I wish you were still here.
I want you to know… she’s learning how to crawl, she has your golden brown curls and she loves the color orange- a true Flyers fan. You would really fall in love with her. I wish you could just hold her. Or me.
I miss you.
FTN

Dad

Mark L. Worth <3
3/26/49 to 4/21/98

5 Comments

Filed under Family Life