Tag Archives: Dave

Sleep in Luxury at the Manchester Grand Hyatt San Diego #travel

We went to Dan Diego for the LPA National this year, and though it’s only our second National Conference, like last year, I was blown away by the fantastic hotel that was chosen as the main site. The Manchester Grand Hyatt in San Diego offered many comforts in the rooms, wonderful on-site food, is within walking distance to all-things awesome, and has gorgeous views from both towers (where guest rooms are located)!

When we pulled up to the hotel, it was about 1am. Eight of us unloaded from a shuttle service we’d all taken for a nominal fee from the airport located just a few miles away. Immediately men were there to take our bags and help us to the front desk where I checked in and asked a bunch of questions pertaining to our reservation. Because we were staying there under the conference rate (unbeatable) and when I’d first booked the night of July 4th was full, I ended up needing to make 2 different reservations to get the dates we wanted. Though understandable, I was bummed to learn that we would have to switch rooms the next day, but not to worry about that- we could stay in the room as long as was necessary to get our other room ready- a HUGE relief when you’re talking toddler, luggage and pregnant mama.

#aisforadelaide #hyatt #sandiego #travel #california #sleep

The beds were, clearly, very comfortable!

We started out in the Harbor Tower, getting to our room, searching through our suitcases stuffed with rolled up clothes until we found our PJs and toothbrushes, then passed out in the comfy bed. I was happy that although it was the 4th of July and there was a lot of celebrating going on, I didn’t hear it through the walls. We were able to get a great night’s sleep, and thanks to the time change and a nap on the plane, we were up pretty early!

We wandered out to get breakfast at  Café 222 (I’ll tell you all about that in another post) and then we headed back to the hotel… on our way stopping at an awesome playground and community garden to swing, walk, and talk about outdoor gardening all-year long! It was SO cool to just happen upon a superbly clean (not even a cigarette butt or graffiti in sight) city play area with such a beautiful garden and maintained path.

#aisforadelaide #sandiego #travel #communitygarden #hyatt #manchestergrandhotel

When we got back to the hotel from our breakfast and walk, we packed up anything that had been unpacked, checked out the view and then got a call that my parents had arrived! Addie was just ready for a nap, so Dave went to meet them and collect their luggage  until their room was ready- awesomely, by the time he got down to the lobby, their room was already ready (3 hours before check-in time!) and he helped them get to their room and settle in before he headed out for some snacks.

When he returned, we moved into the room where we would stay for the remainder of our time with the help of a bellhop and a sleeping toddler perched on my shoulder. This time our room was in the other tower, the Seaport Tower, on the 29th floor. Because we had to switch rooms, they actually gave us a higher floor (better view) without asking! The rooms were almost identical, with the biggest difference being that the bathroom layout was a bit different making the door open as you would expect, where the first room it slid open (which was really cool!).

#aisforadelaide #travel #sandiego #manchestergrandhyatt #hotelviews

We had a room with 2 double beds, thinking Addie would be in her own bed, but because she’s two, she ended up in our bed most nights- which made me wish we’d gotten a king, but the beds were comfy and we made it work! The table by the window was great for sitting and looking out over the city and I loved that we had a comfy chair so that I could sit and read while Addie napped (everyone made use of that chair for the same reason!). We also could relax in the room with the single-serve coffee and teas they provided which were actually good! The desk in the room was perfect for getting the work done that I could without WiFi, which was only free in the lobby, and the large TV in the room got PBS- making everyone happy when the adults wanted an extra 10 minutes of prep time and the Miss wanted to go, go, go on an adventure (from the Cat in the Hat theme song!).

#aisforadelaide #manchestergranhyatt #travel #hotelreview #sandiego #toddlerlife

The biggest drawback of the room was the fridge that was not only really small, but didn’t get cold enough to hold anything that could spoil. At conferences, we like to bring or buy food while we are there to save money on eating out, but not having refrigeration made that hard. Being able to rent a microwave for the room, however, is pretty awesome! The sink in the bathroom also seemed really high- and I’m tall. While the look is clean and modern (which I love), it’s not easy to actually use (I stood on my toes to wash my face over the sink without spilling water everywhere).

Finally, the pool! While we didn’t make it to the pool designated for adults only, we did get to spend some time at the 4th floor pool, which was beautiful! We walked right out from the elevators, to the deck, which is easily accessible from either tower and grabbed as many towels as we needed (no need to steal them from your room!), parked ourselves on some chairs near the steps and enjoyed playing the friends, splashing and sipping water. There is deck-service, which is awesome, for anyone who wants to order something to eat or drink right from their chair! Addie and Dave spent a lot of time in the pool- with Addie playing on the steps and jumping in from the side with the other kids. Me? I lounged my big, pregnant belly in the sun for a dose of vitamin D and a nap! The chairs were so comfortable, I would have stayed there had Dave not reminded me we needed to get dinner before Addie’s bedtime!

#aisforadelaide #travel #sandiego #pool #luxurytravel #hotelreview #manchestergrandhyatt #hyatt

We really loved the hotel and all the grandeur it offered while still being affordable (at the conference rate for us), but wish the lobby had been a bit more conducive to meeting people. Last year at the conference the hotel lobby was built in more of a compact and circular feel, with the lounge closer and lobby seating closer together, as well as the hotel restaurants close-by. This made it easier for people to connect and bump into each other. With the lobby being planned in more of a rectangle with the bar at one end and a café at the other, and minimal seating, it was hard to bump into people- although easy to find a place to meet up if you planned it.

The Manchester Grand Hyatt made staying in the city such a luxury- close to good food and meet up spots like the The Seaport Village and within walking distance to the Gaslamp Quarter and convention center- this is the place you want to stay, whether business or pleasure, on your next trip to San Diego!

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Filed under Reviews, Travel

My Good Life and How I Fuel It!

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When I wake up in the morning, I always look to my nightstand where I leave a list of what needs to be done. It’s usually long and lists times, if necessary, but what’s it’s usually lacking is a place for breakfast.

#aisforadelaide #todolist #shop #MyGoodLife #CollectiveBias #cbias

…it’s been especially hard here with Addie not feeling well and having some pain eating solid foods. Naturally, Dave worries about us, but even more so, he worries about my eating and taking care of myself- especially while pregnant. To help both Addie and myself, Dave went on a mission to find some simple solutions for his ladies.

#aisforadelaide #addieanddaddy #shop #cbias #collectivebias #MyGoodLife

A very concerned daddy!

To fuel our mornings, we need quick, easy and transportable and in the breakfast aisle of Walmart Dave found just want he wanted… an easy to mix breakfast shake that I wouldn’t fight him to drink.

#aisforadelaide #cbias #shop #collectivebias #MyGoodLife Shopping at Walmart to Fuel My Mornings

I LOVE milk, but need more than a glass to sustain me until lunch. Nestle Carnation® Breakfast Essentials™ packets are something I come back to again and again. When I was pregnant with Addie, they served as an afternoon snack at work, and now they are what make breakfast so simple for me. In fact, this is the first whole week in my entire pregnancy that I’ve had breakfast with enough calories and complete nutrition. Seriously… 32 weeks today and I’ve finally accomplished breakfast on a routine basis. Go me!

#aisforadelaide #shop #cbias #CollectiveBias #MyGoodLife Fuel Your Morning with Nestle and Carnation Instant Breakfast


I feel like I had the opportunity to have breakfast because Addie has been under-the-weather and so we’re not rushing to her usual classes… but this also leaves us home all day and my sweet lady still not able to eat like her usual self- leaving her little ribs looking rather exposed. Knowing this, Dave and I have gotten really creative with just getting calories in her, but we don’t want to load her up with junk. What we came up with comes from the same family as my breakfast solution: Nesquick®. While Addie has never had any special milk flavoring (just plain, organic 2%), the need to get more calories in her with some vitamins took over, and as I mixed her a cup and we started our day (with lots of appointments), she gladly took it!

While we won’t use Nesquick a lot, it is nice to have knowing there are a few upcoming procedures she will be going through and some of them will render her hopeless in terms of feeding. Milk is the way we usually go to get energy in our sweet girl to just keep her going through the days of recovery. I am so thankful to have found something to help us boost her vitamin intake in  a tasty way!

It’s hard to get up and take care of everything that needs to get done in 24 hours for the house, your kids and family, while remembering yourself, but breakfast is the most important meal of the day! I try to remember that I am not just helping my family thrive by giving them the best nutrition, but by taking care of me  I am setting a good example, too.

Thank you to #CollectiveBias for helping us make breakfast a regular meal in this house again! This is #MyGoodLife… what’s yours?

#aisforadelaide #MyGoodLife #CollectiveBias #shop Fueling my Family's Morning

How do you make sure that you have breakfast every morning while still getting out of the house on time?

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Celebrating 5 Years with my Creative Card Ideas…

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#aisforadelaide #valuecards #shop #martinkadelux #woodanniversary

The past few weeks have been full of life in all it’s glory, pertaining to everything except my sweet husband and myself. I’ve been feeling a bit better, coming down from the non-stop action, daydreaming about the pending arrival of our second daughter and making plans for upcoming medical events for Addie. But then, as we were doing a little family shopping at Walmart, I walked down the card aisle and remembered: our 5 year wedding anniversary is Saturday!

Walmart Card Aisle #collectivebias #shop #valucards #cbias #aisforadelaide

Let that sink in.

Five years ago I woke up to 4 1/2 inches of rain falling from the hot summer sky, staring out into my parents’ backyard as my wedding arch was being drenched and the yard flooded. A few hours later my bridesmaids and I were on our way in my mom’s minivan to the reception-turned-ceremony location for our nuptials. Just as I turned and walked down the aisle, I noticed the rain had cleared. Roads were closed, the wedding started about an hour later than expected, our antique car ride to the party was canceled and things were going a bit off-plan, but there he was, waiting for me at the end of my white path strewn with petals.

#collectivebias #cbias #valuecards #shop #aisforadelaide Creatively Celebrating 5 Wonderful Years

What I saw as I walked to my future <3

So as I stood in the card aisle, checking out the selection of Hallmark cards (the new Value Cards are priced at 47¢ and 97¢!), my toddler being playfully chased by this amazing dude-turned husband-turned daddy, I chose cards I thought showed my love and our playful relationship. For me, cards mean more than gifts- the words we choose to use with those we love can sometimes be spit out from our mouths before we can really think about them, but for me, writing is such an outlet. Hallmark always gives me the perfect start to what I want to say- with awesome graphics and quality card stock!

#aisforadelaide #shop #collectivebias #cbias #valuecards Hallmark's Value Cards at Walmart

There was a beautiful selection of cards, but mostly, at the point where we are in life, it’s more than just an anniversary- it’s the friendship we’ve cultivated. A marriage of trusting one another to make the right decisions in places where the other person is practically blind. For me, I have to trust our finances to Dave, and for me, everything related to Addie’s health is relayed through me to him. Our marriage amazes me because for years, I was not a trusting person… Dave brings out the best in me and for that reason, there isn’t a gift to convey how much these past 5 years have meant, but plenty of things I could say.

Perfect for any day to show your love Hallmark #ValueCards #aisforadelaide #shop #collectiveBias #Cbias #love

I chose 5 different cards to write in- one for each year of marriage. In each one I wrote something about that year of our life together- where we were, what we were doing, any memorable trips (year one we went camping then 6 months after the wedding on our honeymoon, while I was pregnant with Addie we spent Christmas in Florida and went to a wedding in Hawaii, this year we went to Cali…), big projects (hello year one basement renovation!), and so on.

My Hallmark Card Choices to Celebrate 5 Years of Marriage! #aisforadelaide #shop #collectivebias #cbias #valuecards

I am in the midst of saving up to get Dave a fun gift, and I dream of having the kind of lifestyle where I could surprise him with a trip to New Zealand (we both want to g0), but went with a simple, classic offering. The fifth year of marriage is traditionally celebrated with wood, and my friend, who is in the process of adopting three (yes, three) beautiful kids from Ukraine happened to be making family plaques to raise money. There was no more perfect gift for us.

#aisforadelaide #wedding #anniversary #shop #cbias #collectivebias #valuecards Celebrate Love


While there are a million things in this world we want, what we need, as a couple, is to keep the lines of communication open and always remind each other how much we love and appreciate what the other does. Hallmark helps me do this year after year in different life events and celebrations. But besides loving the care put into their cards, my all-time favorite part about buying Hallmark… the Hallmark Rewards program! You can earn rewards for the Hallmark cards you buy at Walmart. For every 5 cards you buy, you’ll earn a reward- I just reached my 5th and got a $5 gift card to one of my favorite stores! Be sure to check out Connections from Hallmark to sign up for Hallmark Rewards, and to see great content from other #CollectiveBias members and bloggers. Join in the #ValueCards conversation on Twitter and check for more card greeting ideas!

Celebrating 5 Years with Creative Crd Ideas #Valuecards #aisforadelaide #shop #weddinganniversary #collectivebias #cbias

Do you have creative card ideas to celebrate your life events?

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Filed under Parenting/Family/Lifestyle, Reviews

Keep Pushing

I was unable to find anyone who recorded (or even took a picture!) of the LPA Speakers’ Night, but I wanted to share my piece with you. I plan on recording me speaking it, but wanted to share it with you (written) in the meantime. So, without further stalling, here is my LPA Speakers’ Night Piece entitled: Keep Pushing.

#lpaSD2014 #LPA Speakers Night

As I embark upon the birth of my second child, I find the title of my piece ironic.

Keep pushing.

While that’s not my birthing mantra- that one is just breathe- Keep pushing is my mission in life.

Letting ourselves be defined by anything, even things that are so apparent, like our gender, sexual preference, race or disability is no way to live. It’s no way I will let myself or my children live, so why do other people expect me to allow such behaviors from them?

The answer is simple. The answer points a finger. The answer stings. The answer is me.

People treat others as they are allowed to. Sad? Pathetic? Lame? You bet. But it’s the truth. We love to take advantage of life- be lazy where we can be. We often, as humans, forget the implications of our language.

We let people call us homo, fat, crazy, midget, whore. Because as a culture stopping these things is too “politically correct”. We fear that we are being “too sensitive”, we aren’t raising tough kids, or we ourselves do not have thick skin.

“Good luck this time!”
“Good for you- trying again.”
“Sucks you didn’t know before she was born.”
“Is there anything they can do for her when she’s older to make her taller?”

Fellow humans have said these things to me. Why does the world view dwarfism as something to be cured, rather than embraced as a difference?

We don’t want to question what others say. We give up our right to know about ourselves when we don’t ask the hard questions.

“I don’t know.”
“We will learn together.”
“Let’s come back to that.”
“This is my first one.”

Doctors have said these things to me. Why is the education about dwarfism so slim that many medical professionals fear the diagnosis of dwarfism- offering patients little education and less options.

My mantra, Keep pushing. For respect, for knowledge.

Do you see it yet? Do you feel the need to push?

There is change that can be made. There is change that needs to be made. There are generations coming up behind you and me, behind the children being born today and the children following them. There are millions of people yet to be born, and thousands will have a form of dwarfism.

But they will not be dwarfs.

They will be painters and doctors. They will be writers and scientists. They will be political leaders and dreamers and veterinarians. Those born with a form of dwarfism will love and be loved. They will change lives and shape the world for future generations. The way we need to now.

There is a need to define ourselves by what we want as a community and let the masses, not the few, lead the way. Television shows that pigeonhole this community, media misconceptions, movies and comedians are things of the past when we push- and keep pushing- to be defined not as little people, but as people. Height doesn’t make someone smart, or happy, or better than. Average height just makes you average.

Be spectacular regardless. Keep pushing.

When a doctor tells me they do not know, I ask, “how will you find the answer?” When I am given news about a health concern and then that same medical professional attempts to leave the room, I ask for further explanation. I ask what our course of action is. I ask what their medical opinion and experience are. What is the timeline. How do we proceed? I push to know more. I push to make them answer. To make them accountable for their diagnosis. I refuse to let Google do my doctoring. I refuse to leave not knowing.

Too many parents email me with the same story. It goes like this: The doctors told me my baby would be a dwarf. They gave me a packet of papers and told me to make appointments for these things. They told me to be prepared, but not for what.

More often than not, I offer my telephone number. I spend hours each week calming mothers-to-be and new parents. Not giving medical advice, but offering an ear and listening to questions that are left unanswered. Unanswered concerns from a doctor who left their patients with a handout and maybe a few people to call.

This is not OK. This is not how patients should be treated. Dwarfism is not unknown. Specialists exist!

In my hours on the phone I’ve looked up local hospitals with clinics, referred many to our own team in Delaware, and always given out the LPA’s website. Hours spent giving the same basic information that needs to be readily available to all patients with a diagnosis of dwarfism. Support, love and most importantly, knowledge.

Keep pushing.

Keep pushing so that when someone sees a person of short stature they smile, the same smile they offer any other human on the street. Why? Because a person of short stature is any other human.

Keep pushing to make changes, because if there is such an uprising about a professional football team name change, then there should be a change across the nation of high school sports teams named The Midgets. Because other people do not decide what offends you. Because other people don’t control our emotions. Because being sensitive, caring, respectful people is what defines a civilized culture. That is what humanity means. Because even doctors need to learn something new every day. Because bedside manner isn’t dead (and neither is chivalry, if you were wondering).

There isn’t a facet of our culture that doesn’t need advocacy from our community, so be that voice. Never stop pushing because it doesn’t bother you anymore, or because you think one person can’t make a difference. One voice. One community. One change at a time.

Keep pushing because letting ourselves be defined by anything, even things that are so apparent, like our gender, sexual preference, race or disability is no way to live. It’s no way I will let myself or my children live, and I won’t being defined by anyone but myself.

 

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Filed under Achondroplasia, Community, Educate/Adovocate/Make Change

On being a special needs parent…

I read THIS yesterday as parent after parent on my Facebook feed shared the article. At the time, I was scanning the web from my phone from beneath my dearest Adelaide, softly crying.

Although I’ve posted a few updates on her, it’s been a whirlwind since we’ve returned from the LPA National Conference in San Diego… we landed late Saturday night, spent the day jet lagged, but as a family, on Sunday, then had an incredibly busy Monday running from Addie’s physical therapy, the OB and chiropractor for me, and fielding calls from 4 different doctors (have I mentioned that when an actual doctor calls, it’s usually not good?). On Tuesday morning I said goodbye to Dave as he headed to work, and he kissed me extra hard. The look in his eye told me what I needed to know; it pained him that I would be going through a surgery without him and he had no words. Neither did I. He carried our still-sleeping girl to the car for me and kissed her face and head as he hesitantly closed the car door.

I didn’t even cry. After she was under sedation, I calmly left the room, my head spinning as I attempted to control my breathing. I gathered our belongings for our overnight stay and meandered around the corner to the waiting room where, after spending  a solid 15 minutes staring at the surgical board, called my mom. Then I tried on one long-sleeve shirt, but then I was wearing too much gray, so I took it off and put on the blue one- it was from the 5k I did a few weeks ago. You’re strong enough for this, Chelley. I sat down and got out my work. I use 3 different spreadsheets to track my work, sponsored posts, links, blog posts and the like. I took out a pen and started to cross things off and move things around. I planned for a few days of recovery where I could do some work, but not a lot. I took out my highlighter and crossed off everything I’d done. I felt grateful that I have the option to push work aside when I need to because Dave takes care of us.

#aisforadelaide #specialneedsparenting #motherhood #specialneeds

So back to the article. It’s a few days post-tubes (second set) and adenoidectomy and Addie was on top of me, where she’s been a lot since her surgery. Perched on my chest, or curled up around my belly inciting kicks from her baby sister, inside. She was running about 100º and shaking, her little body clad in nothing but a Bumgenius diaper, snoring and sweating through my own tank top. Every now and again, she would stir and cry in her slumber. So I read, and I softly cried, too. If you follow along with the article, I cried because:

1. Sometimes lonely doesn’t describe it. Even when I have a moment to connect with friends and family I cannot express the fear I feel. The fact that everyone in the world could be there to hold my hand, and I would still feel like I was standing alone- especially when I am there without Dave. Because when we do have time to talk, I want to talk about Addie every moment and not at all, and not knowing how to process your own emotions is a lonely place to be.

2. Dave and I are a power couple. We aren’t changing the world, but we’re shaping our own. And we have to work at it everyday. We discuss a lot of medical things, we sleep very little large chunks… but we do it all together. Sometimes we snap and bite, but the lines of communication don’t close. Sleep, fancy cars, and, yes, even intimacy can wait… but not forever. We fight for that. For this. For us.

3. Enough said. I can go mama bear in 1.4 seconds flat, however.

4. All the time. This is also due to my losing a brother, young cousin and father before I was 13. But even more so, as we look deeper into Addie’s spine and decompression and blackouts and sleep… I feel relief when she wakes up. I hate that feeling. I just want to wake up and not have my heart leap and stop until I see her ribs expand and contract with the sweet sound of her breath. I hope this fear won’t last forever.

She is #aisforadelaide #strength #courage #laughter

5. Sometimes I know that my voice means less than my body. The length of my reach engulfing her body as she cringes in pain or fear at an appointment. The way she melts into my shoulder or tucks into my chest as they try to take another set of vitals, insert an IV, measure another limb. The way she won’t wear a mask unless I gently place it over her face. There are no words… just the touch of mom. Recently I learned skin-to-skin is important past infancy, as Addie craves feeling my heart beat and holding my necklace. She reaches into my shirt just to feel my skin, and I crave comforting her. Touch is so healing and speaks louder than words. When I ask her if she’s ok and she grabs my face into her own kisses me and settles into my arms. Words seemingly, in that moment, mean nothing.

6. While Addie doesn’t have speech issues, hearing your child come out of sedation like a lion screaming for you or waking in an apnea episode startled wanting only you… those are the times I cherish her communication most.

So, in light of her adenoids being removed, which gives off the most horrible breath, and my heightened sense of smell, her small shaking body, feverish and gripping, the hours we’ve spent in the same position (painful for me)… this is just what we do. And after the hours. The physical ache and mental exhaustion… the moments left in between. There’s still a light inside.

#aisforadelaide #sarifices #parenthood #specialneedsparenting

…been laying here for hours. Wouldn’t trade a minute.

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Filed under Achondroplasia, Educate/Adovocate/Make Change, Parenting/Family/Lifestyle

Marvelous Monday

Ahhh… Monday. I’ve actually been dreading this Monday, afraid of it- if you will.

Today Addie heads to Hasbro Children’s Hospital for her MRI.

A lot of readers have asked me why I do not write about dwarfism more, and the simple answer is: because that is not all there is in our lives. Neither Adelaide, nor the Martinka family are defined by the attributes of achondroplasia, and as such, I refuse to let my writing (and my mind) be consumed by the diagnosis. On the plus side, there is a lot of information here- as well as in the blog roll- which I encourage readers to check out! All charts are updated and a great accompaniment to your regular pediatrician’s repertoire of monitoring your child, and there are different categories for other information, including one specifically about achondroplasia. If you’re looking for something specific, try the search box!

But, I find myself here. Wanting to embrace the week, but fearing its start. Addie is due for an MRI at 1pm. This means the usual things for children of such an age getting an MRI- no food for 6 hours, sedation… oh yeah. Sedation. Due to the complications involved with achondroplasia, namely the compression that is apparent in all patients (the severity is what differs), Addie has a special team and guidelines to her being under. I am thankful that we have such an awesome team behind us, but I am always fearing the unknown- especially when her previous experience with anesthesia was not good. CONSIDERATIONS FOR ANESTHESIA DOCUMENT.

As I’ve mentioned before, I want to share information on this blog, but I do not want to delve into all of Adelaide’s medical history. It’s entirety to share is her choice… but I do want to educate. So, I will share what’s been happening these past few months.

Addie has fallen a total of 6 times, and been unable to catch herself. Each time she has fallen (backwards), she’s landed squarely on the back of her head… after which her eyes roll, she goes limp and doesn’t breathe for a time of 5 to 10 seconds. After these episodes, she’s bounced back pretty well that day, with no walking or pupillary issues. But… she’s blacking out. Cold. Six times. This has more than a few of her doctors worried, and before she goes under for another set of tubes and adenoid removal, we need to confirm there isn’t a deeper issue.

Thus, an MRI.

This Monday, I ask for your good thoughts, prayers, and virtual hugs… because while I know Addie is strong enough to handle anything, I’m not sure I am.

To all the mamas and papas before me who have battled more than I could imagine, you give me strength. Thank you for your love and support- through the major, the minor, and everything in between.

flourish

But… you didn’t think I would leave you there, did you?! It’s Monday! Marvelous Monday! There is too much to celebrate in life, and this week I am more than thankful for the love and support I have, but also the opportunities. My hubby is amazing, and his hard work has afforded me the opportunity to grow as a writer and mother… and athlete. I was recently accepted into the Fit For Two Ambassadors program- which I practically begged for (really), and just in time for their awesome Instagram campaign- beginning today!

For Two Fitness is a favorite of mine for so many reasons, including the company’s commitment to moms. Whether you’re a runner, cyclist, yogi, dancer, lifter, casual gym visitor, total gym rat… or just get into the groove when you can, the products offered will give you confidence and comfort in all of your workouts. The tops are made to move with you and your babe and the bottoms to cover everything, but give you movement… both pre and post baby. I love that the company is family-owned and operated- and think all new mamas deserve the love they have for their customers. So… what was all that about a giveaway?

From today until Friday, when you post the image below on Instagram with the hashtag #fortwofitnessgift and mention @fortwofitness you’re entered to be the one lucky Instagrammer who will win a $100 gift card to For Two Fitness – the very best in maternity activewear! Bonus points if you share what your For Two fave product is… mine? Training for Two racerback tank… a must for ALL activities! Check out my IG profile @martinkadeluxe and capture the image there, too!

Don’t forget to enter yourself in this awesome contest- there are products for mamas-to-be and new mamas- and even a few pieces for in between moments! Good luck, Reader!

I hope you have a beautiful week… starting with this Marvelous Monday we have all been blessed to have!

xo

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Filed under Achondroplasia, Fitness, Marvelous Monday

Marvelous Monday

What a wonderful weekend- jammed packed with all I am thankful for and all things dwarfism! I have mentioned LPA about a million times, and all the support they offer to the LP community, but there is so much more than that.

There are lifelong memories made by friends who see each other a few times a year. Parents who lament all the silly things that we get that no one else truly does. Not life-altering stuff, but finding shoes that fit, are cool and also comfy. Why moving a faucet can make life easier for your child. How to hem jeans. It’s the same old parenting things we all think about, but rarely do we encounter so many seemingly minuscule things over and over and over.

The best part? When Addie gets into a large group of kids, there are no worries because this community is watching over her- everyone.

This mama may be suffering from serious pregnancy hormones, but when Jackie and Avery (two fabulous young ladies) took Addie’s hands and walked her to their dance circle complete with other girls, and encouraged her to dance, laughed with her and never let her out of their sight, I walked away, took my seat, gripped a cup of ice water and swallowed my tears. My face was hot. My body felt cold.

#aisforadelaide #firstdance #lparegional #2014

My daughter already has an amazing life.

I watched what her Spring and Fall would bring each year, as our District regionals pass by. I saw middle school dances and girlie laughter about things that us parents would just never understand. As I sipped my water, surrounded by women I’ve grown to love in our brief, but powerful 21 months as LPA members, we laughed at my verge of crying.

#aisforadelaide #ladiesnight #LPAspringregional2014

I have an amazing life.

These moments are not forever. We have our struggles. We have some of the happiest moments of our lives without the LPA, or anything related to dwarfism. Being little, or big, or average does not define us. Having such fabulous friends, regardless of distance, giving my child the opportunity to live her life and being guided by those around me. That defines me. There is nothing like knowing that your life changes shape when you let go of the reigns and just live.

With $100 in our pocket and a cooler full of fruit, bread, peanut butter and tuna, we went to Cape Cod. It was our first regional with our LPA district. We got to ask questions. We got to answer a few. I shared a conversation with men and women. Some were my height, some were not. But the conversations were the same. Our kids were being crazy, they all needed to sleep, we all enjoyed the sunset at the banquet, our clothes seemed to be getting tighter as the New England winter ceases to end. I joked with my ladies about this and that. We all ragged on each other, shared hugs, high-fived the  kids.

Being members of the LPA has allowed us to NOT define our family by dwarfism, but to learn in a safe, well educated environment for ourselves, our daughter (and future baby!) and those who will learn from us. To balance our lives between doctors and normalcy, because at the end of each day, I am doing the same as any parent… reading 102 books before bed, watching my child guzzle more water than they consumed the entire day and praying they don’t spring a leak in the night, kissing her cheeks and watching the monitor (sure, I’m also listening for snores and leg movements, but that’s neither here nor there). Addie? She’s just like your child. And me? I’m just like you. Tired, stressed and loving every minute of this crazy, fast-paced thing they call Parenting.

#aisforadelaide #swimming #capecop #seacresthotel #lpaspringregional2014

And my random  of the week? If you missed it before, don’t forget to check out this awesome video below <3 <3 <3 (Yes… I’m a bit excited to share after holding it in for 13 weeks!!!!!)

Happy Monday, Reader!!!

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Filed under Achondroplasia, Community, Marvelous Monday

Over the Hill

Just kidding!

Happy 37th year to my handsome hubby, wonderful Daddy and super rock star,  Dave!!!

#aisforadelaide #davesbirthday #37yearsold

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Happy 6 Years

It all started with a drink. Just one drink, 11 years ago, served to me by a dude with sideburns so long they almost touched under his chin.

Amish Dave they called him.

Then we ran into each other again, about 6 1/2 years ago.

“Dave?”
(taking steps backward)
“Chelley?”

We saw each other New Year’s Eve 2008. It was awkward. We both kissed other people. But we kept bumping into each other. We went on a weekday brunch date. He let me pay for myself. He didn’t drink coffee or eat meat. I wasn’t impressed, but I offered to drive him to work… 2 blocks away. We hugged… like teenagers and grandparents in a mall. He declined a ride and walked.

And yet he called.

We met for drinks. I bought him a lot of whiskey and then let him bike home. I showed up 15 minutes later with a guitar cake pan, Sin City comic book and percolator. We kissed. It was all over.#aisforadelaide 6 Years with Dave

And here we are. 6 years later. He eats meat and drinks too much coffee. I don’t even pay for the gas in my car, but he smiles when I offer. We hug like long lost lovers. I would recognize his face even if I lost my sight. Thank the heavens for whiskey, bikes, comic books, cheap cake pans, and coffee.

 

Happy 6 years, Dave.

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Marvelous Monday 2014!!!!

HAPPY NEW YEAR!

Now that’s out of the way, onto our usual MM post (thankful, dwarfism, random)… Hold onto your hats. It’s gonna be a long one!

This week I am thankful for the 2 weeks Addie and I have had with Dave. Yes. TWO weeks. We left for Philadelphia on the Saturday before Christmas and we got back to RI the following one. Dave headed into work for Monday and half of Tuesday, had New Year’s Day off, then Hercules dropped some snow on us and Dave was home Thursday and Friday. As he heads into work today, I hope he feels the relief of being back to a schedule.

#aisforadelaide #hercules #newengland #snowstorm2014 #blog #asnowday in the Martinka house

Since his time off I have not gotten out of bed before 9am. Most days, not before 10… and there were a few 11′s in there. True story. I ate a hot breakfast almost everyday. I showered more than twice a week. I dried my hair, by myself. I did my nails, put on a face mask or two, deep conditioned my hair, read half a book, caught up on reading some of my favorite blogs and resumed some semblance of a daily workout. This refreshing end/start to the year(s) was so important to getting my head on straight… and brings me to other things to be thankful for- like the way Dave has changed and his awesome boss.

Spending time alone with Addie when she was an infant was hard for anyone but me- her sole provider of food and the one who understood each cry and sound. Now that she’s (incredibly) vocal, understands requests and direction and eats pretty much anything that’s not nailed down, I find myself alone when Dave is home. Off on some adventure, Dave steals Addie while I sleep to make food, run errands, or read stories in her bedroom. We both give each other the eye in some strange competition of Who Will Be The One She Wants to Put Her to Sleep Tonight. When she’s hurting, Daddy can heal her pain and when she needs snuggles at night, she often begs for Daddy to rescue her from the crib. While it is nice to not have to get up at 4am, I’ve found myself pushed to the edge of the bed, sad. I miss the days she needed me so much.

#aisforadelaide What happens when Dave doesn't work #blog

Then there is the look. The look of peace and warmth. It’s what Dave’s face looks like, even at 6:30am when hungah spews over and over from the mouth of a half-awake toddler into the open space of our room. When she cries waahwaah hungah nanaaah and he hops up and asks, “you’re ready for breakfast, Bug?” There is the look of total contentment. Whatever happens to a woman to feel the love she does for her young happens to a man, too. I’ve seen it first-hand.

#aisforadelaide #blog #weekend

I’m also incredibly blessed that Dave’s boss recognized that his employees come in by train from Boston and from 50 miles away by car, and decided to cancel work before the snow hit. With a few calls and some research, Dave stayed on top of the tail-end of his work week from the safety and warmth (and yet, drafts?) of home. For a job he stumbled upon with a start-up just 3 years ago, his career is blossoming in ways we never could have foreseen.

*  *  *

And so she grows. No really. I just wrote about this on a post of the same name: AND SO SHE GROWS, AND SO SHE GROWS. If you know Billy Joel, you will see my play on words from And So it Goes, and you may recognize the true heartache that comes with watching your child grow up mature. When Addie was diagnosed, we were warned about all the things she would never do and we were told of all the milestones we would miss. We were given predictions about her height and told she had to be on a hard surface always and most toys were a no-go and her balance would be bad… and so on. And after all that, I was overwhelmed and sad. We got rid of bouncers and carriers and sleepers. I found toys that were good for her, but not always mature enough. And I didn’t know where to go. As a new mom to a special needs child, I wish I’d known all of THIS.

But I didn’t, and I wasn’t prepared for a doctor to be wrong. But she was. Not because all babies with dwarfism do walk before 36 months, although many do, or because she’s not as small as I once believed she would be, or that she has decent balance. No. I wasn’t prepared because I got lost in a negative world. I don’t always see Addie as growing up… she doesn’t always gain an up, but she does grow in her intelligence, in her beauty, in her love and understanding and in her compassion. Initially I was worried I would hinder her into a sheltered life- one where I would hide all the bad. And becoming CPL didn’t help that fear. But then I saw. I saw her say “HI!” to everyone she meets, and wave with an exuberant “BYE PEOPLE”, as we exit any given location. I have witnessed her love, as I cook dinner and she reaches around my leg with a hug and a pat and whispers love you, mama so gently into the back of my knee. She loves me, without prompting or pressure, without even seeing my face, she buries her own into my leg and expresses her own emotion.

Do I protect her? Yes. Just as I will put a helmet, and knee and elbow pads on her to ride a bike. Just as many parents do. I didn’t wear knee or elbow pads and my helmet surely did not fit as well as they do now… does that mean my parents didn’t care? Am I just over-protective? Should she never ride a bike?

I could wrack my brain forever. I could worry about all the things you might think of how I parent, or how your neighbor might feel about me, or that dude who anonymously comments on my posts in the most negative of lights. But then, I wouldn’t be parenting, I would be absorbed in my thoughts about everyone else’s thoughts. So, let’s call it a truce. Let’s make a pact.

This blog was started with the intention to education about dwarfism, but if I focus on dwarfism alone, I will alienate myself and you. I will become obsessed, immersed in so many details that I will come to define Adelaide as a person with dwarfism, and not just see her difference as a part of her. I will come to define all people with dwarfism as just that, and if I do that, I will only see myself as a white woman. That will be who I am.  But it’s not. And so, this blog will continue to educate, advocate, spread awareness and push buttons. I will share stories of change and some of adversity. And here’s the best part: I don’t care what you think. While I would love your support and hope you stay to read more posts, what I crave is equality. For my child, for your child. I seek name calling, bullying and fear of the unknown to become a thing of the past. Ask questions- all of them. I want to answer. I want to know your fears so that I may assuage them. I want you to know what terms are accepted to call a person with dwarfism, and I want you to know that you do not have the right to dictate what others feel. Neither do I. On this blog, the m-word will not be tolerated, whether you’re speaking of pickles or humans or anything in between. The word? Midget. And that’s the end. Those are my feelings, on my blog that I write.

So, I won’t judge you, on your blog, should you choose to write one, and you will not judge me.

x_______________________________________________
      emotionally sign here

*  *  *

You’re still with me? I hope so!

I wanted to recap last year’s resolutions (only 3), which I found when I named my resolution post this year: THIS YEAR, I RESOLVE. Somehow I picked the same name, two years in a row, without trying. I guess it’s a series, now!

From last year’s POST:

1. Be nice (to me): Yeah. That. Well… I am better, and I don’t bash myself in front of Addie, ever, but recently I’ve noticed my sweet girl pointing to the scale and saying, “mama.” So, clearly, I still need to work on that. I wish I could take the scale away, but I truly believe it is useful- especially for long runs. I weigh myself before and after to make sure I am not dehydrated. I also check my weight more often than I should, but now I need to be aware of not doing this while Addie is awake. I think this is something many women need to work on, and clearly I am still trying to justify my need for a scale. Regardless, though I am nice-r to myself, in no way am I nice.

2. Know when to hold ‘em: So I still like to fight, but Dave and I are good about holding our tongues and I try to not speak to him in sarcastic tones because I truly do not want Addie to pick that nasty habit up! This is something I am still working on, but I think I will always have to be conscious of my words and actions as I’m a bit of a sailor-mouth with a temper.

3. Earn it to own it: Nailed it! I took time for myself each day to write and came up with 269 posts last year. This year I aim to write posts with just as much heart as ever… and add some time to take care of my fitness goals, too!

So there it is… Monday! I hope you have a beautiful week, Reader!!

xo

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