Tag Archives: Thankful

Marvelous Monday

Dave does so much for us, and watching him grow into his comfort zone as Dad has proven to be one of the most amazing things I’ve ever experienced in my life- it’s like he was meant to have kids… who would have thought? With that, when I heard him say, “Hold on, I’ll tie it,” and then a lot of bustling in another part of the house, I was curious, but I figured Dave was on a mission. With a simple recipe and some instruction, he has started Addie on her way to learning many life lessons that are best done in the kitchen.#aisforadelaide #recipe Cream Cheese Brownies

Walking into our little cooking-zone, I caught Addie and Daddy standing at the counter, mixing away- Addie’s new favorite thing to make in her own kitchen is brownies- no matter what else she makes me with me in the real kitchen, making brownies with Daddy has stuck with her. It was a fabulous weekend, and while I love spending time with my sweet lady, it’s nice to reap the benefits of Daddy-time.

Mmmmmm… brownies!

 

Marble Cream Cheese Brownies
Serves 32
Delicious moist brownies that are as good to eat as they are to look at!
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Prep Time
20 min
Cook Time
40 min
Total Time
1 hr
Prep Time
20 min
Cook Time
40 min
Total Time
1 hr
Ingredients
  1. 1 pkg brownie mix (family size)
  2. 8 oz cream cheese, softened
  3. 1 egg
  4. 1/3 c sugar
  5. 1/2 t. vanilla
Instructions
  1. Heat your oven to 350ºF.
  2. Grease a 13x9 inch pan and set aside.
  3. Prepare your brownie mix as directed on the package (we used pre-packaged for a lesson in READING and FOLLOWING DIRECTIONS).
  4. In mixer, beat cream cheese until it's creamy, then add sugar, egg and vanilla. Mix for about 60 seconds on medium (until well blended).
  5. Drop tablespoons of mixture over brownie batter and use a knife to create swirl patterns.
  6. Bake 40 minutes (or as directed by your package), making sure the middle is full cooked- until the cream cheese portion is lightly browned.
  7. Let cool, and serve! Refrigerate leftovers!
Notes
  1. Substitute for cream cheese: Neufchatel Cheese.
  2. Avoid using brownie mixes with syrup pouches- for an extra chocolate boost, add 1/2 cup semi-sweet chocolate chips over batter before baking.
Adapted from Kraft
Adapted from Kraft
A is for Adelaide and... http://aisforadelaide.com/

 

#aisforadelaide Brownies #recipe #MarvelousMonday

With one simple recipe you can teach so much! Addie learned a lot about following both what was written and what Dave was telling her. Do you use your kitchen for life lessons?

 

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Filed under Make it, Marvelous Monday

Baby Shower Gift Guide

It’s the baby shower, and Mom has registered for it all! The swing, the bouncer, the diaper pail, the carrier, the other carrier, the car seat with the stroller, the other stroller, the jogger, the booster, the convertible seat, the clothes, clothes, clothes, clothes, shoes, clothes, bibs, the socks- they’re so cute- more socks, bedding and lotions and soaps and baby-specific washcloths.

#aisforadelaide Baby Shower Gift Guide #baby #giftguide

While all of this stuff is awesome and some of it necessary, there are always off-registry shoppers (Why? I don’t know.) and people who want to know what Mom really wants. So I compiled a list of 5 things that will help her out more than yet another $78 plastic thing to put baby down in, or more baby shoes. Babies. Don’t. Need. Shoes. No matter how cute. Here’s my Baby Shower Gift Guide!

1. Gift Cards
They seem so impersonal. They’re not. At least not in this case. Personally, one of the most fun things I got to do was shop for my own baby-to-be! A few friends grabbed a cute bib, or an inexpensive item off of my registry and added a gift card- it was perfect. A necessity (like a bottle washer and special safe-for-baby dish soap) and then a treat: I can shop for baby! Clothes are always fun… but really, on week 6 of parenthood, I needed $30 in breast pads, nipple cream and more bags to store my milk– all products I didn’t register for enough of, nor did I know which brand I would like best. For this reason, tapping into one of my gift cards to Target or Babies R Us or Amazon was perfect!

And don’t forget post-baby time for mama! I love Massage Envy and was lucky to have a gift card for a few massages this pregnancy. (There are Massage Envy locations everywhere, by the way!) Or find out where Mom goes for her nails or hair. A gift card to pamper her (or just wash… eeeer, trim her hair) is such a treat!

2. Meals
There are a few different websites that offer meal delivery services… set one up for mama and pick a few dates yourself! Meals in disposable containers are a bonus (bring a bottle of red wine with it, and I may try to keep you). Recently a friend set up Meal Train for me after Addie’s surgery. It saved me three nights of cooking, which gave me time to sit with Addie and give her the attention she needed during her recovery. Post-baby, having someone help out with the cooking (even a breakfast casserole for the mornings) is an invaluable gift!

3. Postpartum Doula
If you read regularly, you know that I love doulas, but did you know that there are more than one type? A postpartum doula comes to the house and helps Mom. She will hold the baby so she can shower, help with laundry, dishes, meal prep, naps… a whole slew of things so Mom can acclimate to motherhood (or motherhood with more!). Local doula Kristen Kardos helped me after Addie was born, and it was wonderful (also something I never would have thought of!). Having a list that you keep (when you notice something that needs to be done, like vacuuming or dishes or folding, write it down and leave it out for guests to see, too) will help you see what you need help with. It’s sometimes hard to ask people who come to visit for help (although if you’re a visitor, please ask Mom what she needs help with- trust me, she’s great at holding the baby, but maybe would like some help making lunch), but having someone come a few times after bringing baby home is so helpful! Book the minimum hours for Mom from a postpartum doula and she will surely thank you from behind those tired eyes!

4. Cleaning Service
I cannot express how awesome this is- there is just no reason to even try. With a new baby, having someone come to the house a few times to vacuum, or to do a BIG clean before the baby comes… whatever you think! Mom will surely appreciate some help getting things more than in order– getting them professionally clean!

5. Stick to the Registry
Still unsure? Just gift something Mom really (thinks she) needs! Not quite a gift idea, but I know before I became a mom for the first time, I panicked. I didn’t know what to do with all the clothes I didn’t register for, and bibs and socks (SO MANY SOCKS!), and a toothfairy pillow (kids don’t lose their teeth for a while)… but I didn’t have enough diapers or wipes or bottles. It’s fun to shop, of course… and I am SO thankful for all the gifts we got when Addie was born, but I can assure you- I didn’t need one more memory book or picture frame as much as I needed some more Pampers and baby wash! Try to mix it up if you’re shopping off the registry.

I hope this helps the next time you’re wondering what to get the mama-to-be! …and no matter what- thank you for helping out mamas. As a soon-to-be mom again, I can tell you that having that love and support to get it all together means so much, both financially and emotionally.

Here’s to more celebrations, more babies, a whole lot of love!

*Tip: include a gift receipt for everything, even diapers!

 

This post was not sponsored by anyone… I have received nothing for the links (or for Baby 2), and will not if you click them- but you can always send me a meal or gift card!

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Filed under Pregnancy/Birth

What is work?

I get asked… what is work for you?

Work for me is finding, sharing, linking, SEO, pushing, asking (begging), repeated emails, on-call 24-hours, it’s coding and embedding and no-following, SEO, it’s commenting and hashtagging, it’s researching material, taking pictures, editing everything under the sun, being up-to-date, SEO (did I mention that, yet?), it’s hoping that you’ll like what I write/make/design enough to share it or see more about it for yourself, holidays spent at a computer and late nights drowned into early mornings. It’s Facebook, Google+, Instagram, Twitter, Pinterest, Facebook Fan Page, Klout, analytics, LinkedIn, groups, memberships, clubs…

More than anything, work for me is rewarding. Not in the classical, monetary way (for me), but in a way that lets me bring you, Dear Reader, things I want to share with you. Reviews and recipes I really love. Stories and snapshots of life that I hope inspire. And the truth about being your average family, even in a special needs world.

That’s work to me.

As I embrace this holiday weekend, thankful that Dave is home with us, I also take into account the blessings that include the opportunity to cultivate my mind, spirit and writing into something that I hope brings joy, knowledge and a respite to the day to all of the people who stop by! Thanks for being one of those friends.

 

… sometimes when I work, I play! Getting the chance to prepare to show off Camille’s soon-to-be arrival!

   

 

 

 

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Filed under Fitness, Parenting/Family/Lifestyle, Pregnancy/Birth

All That Swaggers is Good

Dear Adelaide,

I love being your mom. I’ve been watching you these past few weeks and you’ve just grown leaps and bounds… even in your feet (they’re holding you up so much better since surgery)!

I teared up watching you walk the other day. The way you swagger like no other, the bow in your legs,and sway in your back offering me a comfort others may take for granted. Regardless of things so many doctors said, you’re walking and running. Your gait distinctly Adelaide Eileen. There’s no mistaking all that makes you uniquely you… and it is that which brings me to tears and laughter. All at the same time. This summer has been hard, but I know that whatever you face, we will face together- and it is your strength that will bring us through.

#aisforadelaide #amotherslove #swagger #strength

As we enter another chapter- you becoming a big sister- I’m excited to see how much you flourish!

I love you and your swagger,
Mom

 

 

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Filed under Dear Adelaide

Marvelous Monday

This week is post-op follow up! I am excited for a marvelous Monday… and Tuesday (where we will be back in dance) and Wednesday (where we’ll be back in Rock-a-Baby), and Thursday (which is our appointment) and Friday (when we’ll get a chance to sit and relax and go to a big family event!). It’s been a roller coaster of a summer and now that we’re on the mend, I wanted to celebrate a little bit! We’re so thankful to have some celebration, after all!

#aisforadelaide Marvelous Monday #farmersmarket #weekend #endofsummer

BIG strides happened last week! and I wanted to recap it all as we embark upon another week, sure to show more improvement!
ONE: Addie was off ALL pain medications starting mid-week, and aside from some of the expected soreness and some itchiness, she is doing great!
TWO: We also got pushed out of speech therapy! Addie has been in it because of her ear tubes (we only had sessions once every 6-8 weeks), and we finally had our follow up to tube surgery with our therapist and she and I both agreed that we were done. Addie has wonderful speech, is using inclusive words (“Come with me, mommy. Daddy you come, too.”), is understanding the difference between different but similar emotions, and all-around just doesn’t need speech anymore. We discussed how when Addie’s tubes fall out she may have periods where she will stop doing things (she stopped singing when her ears filled with fluid these past few months), but that it will come back and the sooner we take care of it, the better.
THREE: We also talked about how we would transition her out of Early Intervention. A LOT to think about, but it gave us a great end to the last week- and a wonderful start to our marvelous Monday!!!

I am excited that we’ve come such a long way from where we were 2 weeks ago… and that we were able to enjoy our weekend together- with matching nails, almost finishing Millie’s room, sibling class and going to the farmers market. It was a full weekend, but certainly a wonderful way to start the close out of our summer.

#aisforadelaide #jamberry #julep #nailart Marvelous Monday

Addie went to her sibling class on Saturday, and while it was more for fun, I loved watching her carry around a giant, heavy baby doll, learn to change a diaper and read a book with Dave about becoming a big sister (one she’d read before from the library!). It was a lot of fun.

#aisforadelaide Marvelous Monday #siblingclass

With Addie enjoying a gumbo full of okra on Saturday night, we’re onto cooking leeks and purple potatoes this week… we will surely miss the market when it closes, but will take every advantage of trying all the local fresh fruits and veggies until then!

#aisforadelaide #famersmarket Marvelous Monday #veggies

With an amazing week ahead of us, we’re wishing you a Marvelous Monday and week, Reader!

lots of love,

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Marvelous Monday

It was Hell. The week (plus) of recovery that was supposed to be “a few days”.

I wish that was an exaggeration, but as far as common procedures go, tubes and adenoids tops the list. For Addie, there was the consideration of her spinal compression, so we stayed one night for observation where she turned up roses. The kid was a peach.

Then Wednesday struck.

Let’s start with admission…

She was great! We played and I wore a hairnet over my hat and looked really cool. (I was annoyed by one of the nurses who kept reading her name as “Adeline”- not a great way to instill confidence in a parent- but other than that it was OK.

#aisforadelaide #smilethoughyourheartisbreaking #hospital #surgery

I wrote about the surgery before… it was fine. A-OK. And then we made it to recovery… where she was upset and groggy and didn’t really want to come out of it until we’d been wheeled to her room for our stay.

This made for a late night-  so it was nice that Dave came to the hospital and stayed with us until after midnight when she finally nodded off. We’d all eaten some Boston Market (my pregnancy fave!) and watched some movies and I was feeling relieved that, besides some pain, Addie seemed to be bouncing back quickly!

#aisforadelaide #recovery #surgery #hasbro

The next morning was still uneventful as a few of our doctors were at the hospital that morning- the pediatrician, neurosurgeon and ENT- we got a few visitors and I grabbed myself a coffee from the cart before being handed discharge papers, a bottle of ear drops and heading towards the elevators. Good-bye 5th floor!

#aisforadelaide #readytogohome #recovery #adenoidectomy

Addie still seemed great, if a bit groggy, but I expected nothing less, so we headed home. After her bath she asked to sleep, so I tucked her in bed next to me and while I worked on the laptop, she napped. It was a loud nap- her snoring was rattling my brain and she cried in her slumber. When she woke up I offered her something to eat to no avail and gave her some Motrin, as per doctor’s orders. The night got progressively lethargic as she didn’t eat much dinner and was fussy to sleep.

It was well after midnight and I’d just finished working for the night when I saw her pop up on the monitor. She shot straight up and started to cry. Something is wrong, I felt it in my bones. I ran in, Dave and I practically knocking each other over to get to her and as he shut off her air conditioning, I brought her into our room. I could feel her warmth, and as I made a request for the thermometer I felt the hot, wet slip down my back. Sweet potatoes. The ones I’d made for dinner. They’d reappeared for us onto the bed, so I stripped us both and went to wash up while Dave helped and switched the bedding.

I called the emergency line for the ENT. The doctor told me to keep her hydrated and medicated to keep the fever down and call in the morning. The fever didn’t break for days. Food was nothing Addie desired- not even popsicles or pudding. I could see her ribs. And she cried through every night, even with the ibuprofen and acetaminophen regimen we had. I felt lost. When she finally was feeling better enough to get out of bed, I saw that her head was tilted slightly forward and she wouldn’t move it up. We went for a trip out of the house- the first in days- and she’d found a way to maneuver herself so that her head wouldn’t move. While I was impressed with her resourcefulness, I was scared, too. Why was her fever still there, and the crying in her sleep and now she wouldn’t move her head…?

We went to the pediatrician. We called the ENT. We conferred with the end result exactly as I’d thought: Addie was having an extremely rare, albeit not unknown reaction to adenoid removal.

#aisforadelaide #adenoiectomy #rarereaction #surgery #recovery

But now we are here. With the help of serious antibiotics, a lot of time in bed, and fluids, and after 11 days, Addie was on the mend and closer to being herself! I am thankful for recovery… and life lessons. Many times I thought I knew what an outcome would be, and many times I’ve been wrong. In this case, I knew that Addie would be OK, I just expected it quicker. She’s my warrior and I realize that the time it took for her to heal is that what makes her so- it’s the fact that she did it with such  courage. While I felt a breaking inside, she never did. Every time I asked her if she was OK, she would take my face between her hands and kiss me. She never answered. I don’t think she wanted to tell me, “no,” no matter how bad it hurt.

How could I not be thankful for this blessing… A child who looks out for her mother.

As we embark on this week with an MRI and the final decision as to whether Addie will have spinal decompression surgery, I open my mind to being stronger and more supportive of whatever is thrown at me- because this isn’t about me, this is about Addie and she deserves that much in a mom.

#aisforadelaide #perfection #recovery #surgery #adenoids

Your love and prayers are, as always, appreciated.
Have a beautiful week, Reader.

love,

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Filed under Achondroplasia, Marvelous Monday, Parenting/Family/Lifestyle

Marvelous Monday

You may have noticed an earlier publication today HERE!

It’s a sponsored post by Hallmark and helped our family in multiple ways: one, to celebrate our marriage and two, as a sponsored post, I was paid (or will be with in 30 days unless 30 days falls on a weekend or holiday in which case I’ll be paid the next business day). But that is why I am thankful. I am blessed to have the ability to work from home.

#bethankful #aisforadelaide

As I work each day, hours in the morning, as I can throughout the afternoon, and again until about 1am- I know that the peanuts that some weeks come easier than others, are worth all the linking, liking, posting, research, photos, editing, daily chore threads, shares and other work that I put in 7 days a week to have the option to be home with Addie. I am thankful for the husband that gives me the years it takes to cultivate a blog, and the hours of time at night he spends helping me with last edits, saving every ticket, pamphlet and menu we have, offering back rubs when the clock ticks well past 2am and I have just 5 more minutes of work.

I am thankful that each week, Reader, you come back to the blog and check out what’s happening in the Martinka world.

Here’s to another Marvelous Monday and all the days that follow- may we do what we love each day, even if we don’t love it every day.

xo

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Marvelous Monday

So much to say about what’s been going on, but I keep reflecting on our wonderful experience in California.

If you followed my social media pages, you may have noticed #lpaSD2014 making it’s way around with pictures, quotes, and events… all leading to the LPA National Conference in San Diego. It was amazing.

It is also something that we could not have participated in without the help and support of our parents and my aunt and uncle. Both my parents and Dave’s helped us get there (via flyer miles, rewards, food, and accommodations). I am also extremely grateful for my dearest, who works his tail off at work and then each weekend doing repairs to save up for the cost of eating away from home (yes, a BLT in San Diego is $10!). But it is more than the money. It’s the understanding. My mother-in-law was initially going to come with us (she will be attending workshops with us in Boston in 2017!), but decided that it was just too much for her… however, she still supported us going, which means the world to our family. San Diego is an awesome vacation spot, but the conference, the LPA organization and the knowledge and friendships we gain each year are invaluable to us.

#Aisforadelaide #lpaSD2014 #family #friends #dwarfism

Addie was blessed this year with a gift from a family who lost their child to a rare(r) form of dwarfism with a Lifetime Membership to Little People of America, and we could not be more thankful. Knowing  that Addie will always have access to the best advocacy, community and medical advice, even after Dave and I are not here to guide her, eases my heart. There are so many lesser known facets to the LPA organization that I hope she explores- including scholarships and a deep-rooted community- that having this membership offers her access to all this and so much more- forever! #aisforadelaide #lpaSD2014 #LPANationalConference #SanDiego

With that, the opportunity to go to as many regional (local) and national events as we can gives us all opportunity to learn, play, educate and be educated. Last year, I was a part of a panel that focused on social media and how we present ourselves as a community, and this year I spoke about why I keep pushing (advocating) for more education and awareness. Dave got to learn about different home adaptations and how he can make our house more comfortable for Addie without making it difficult for us. Even the grandparents got to go to some workshops and learn a bit more about what it’s like to grow up as someone with dwarfism, the things they can help Addie with, and just take part in the community.

#aisforadelaide #lpaSD2014 #expo #travel #sandiego

All-in-all… this was an amazing experience. Made that much better by our trip a few hours north to see my Aunt Donna and Uncle Ted. While I am forever grateful to the LPA and being able to experience national events, being able to see my Uncle Ted meant more to me than I can express. My Mom did not find her brother until she was in her 20’s. Adopted at birth, she was able to reconnect years later with a lot of research… and I am so glad she did. My Uncle is amazing- traveling to see us a lot in my youth- and coming to stay with us for much longer than he anticipated, when my Dad passed. We often joke in my family that I was a wild child, but that didn’t really happen until my Dad died. My Uncle saw firsthand how out of control I became and how quickly I down-spiraled. But still, he stayed. Day after day he supported my Mom and did everything he could to help with the daily running of the house, and the big things that my Dad had been too sick to do in his last months of life. Going out to see him, hug him, talk to him and see the spark in his eye was more than I could ask for.

#aisforadelaide #lpasd2014 #family #vacation #travel

He’s sick. I hate that. I hate seeing a man who has rocked the world, serving our country, playing a major role in aerospace development, advancing the programs that offer guide and service dogs to those who need, and most of all being an amazing family man- he’s diminishing in body… but never spirit. I was afraid he would be fragile and was instead surprised to see him, stout as ever, never batting an eye when he needed oxygen or apologizing for needing a break. Quite simply, as Ted has always been, he just is. Maybe that’s where I get my no apologies life-view from… I am who I am, be damned if it upsets you or makes you uncomfortable. And my Aunt Donna, his rock, she’s kind of amazing, too. Her love, support and drive are inspiring. A teacher for years, she set Addie up with all the fun stuff while accepting oxygen deliveries, getting towels for Addie and I to swim, her beaming smile never fading.

#aisforadelaide #family #LPAsd2014 #sandiego #losangeles #travel

There are some days that are really hard. For everyone. I have a family who has taught me, and continues to do so, that there are way more rainbows than rain if we look for them. I am thankful that we got to Cali this summer… for the sun, sand, friendships, education, family.

Have you done a big summer vacation this year? What was your favorite part?

Happy Marvelous Monday, Reader! I hope you have a beautiful week!

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Filed under Community, Marvelous Monday, Travel

Surgery Day!

So here we are again… Hasbro Children’s Hospital! Addie is headed in for her second set of tubes and an adenoidectomy.  I talked to 4 different doctors yesterday, and though I am pretty much not answering my phone if I see 401-444-#### (which indicates someone from Lifespan Hospital Network calling me), I am thankful that we have such an amazing team, willing to do all the research possible to keep Addie safe and healthy.

As many have read, we’re going through a lot of diagnosing and problem-solving for Addie’s blackout episodes, which included an MRI. Sadly, we did not have full follow through of the order, and Addie will need to undergo another round of imaging so we can get a better idea of what might be happening. For this, we will head up to Boston (in a few weeks)…. for today, we just want to get through the ENT battle.

#aisforadelaide #warriorgirl #HasbroChildrensHospital

After I wrote about needing sedation (Addie is intubated as her airways are constricted), and how incredibly apprehensive that makes me (pregnancy hormones don’t help), many people chimed in. I wish that I could say their words helped, but sometimes they hurt or scared me more. When I lost my father 16 years ago I remember a lot of other people missing “the mark” of things to say- there are a thousand articles about what to say to someone who is grieving, but what about parents and caretakers who are scared? I know that nothing said truly makes anyone feel better, but there are things that have made me feel a bit worse about what’s going on and I wanted to share them with you because many parents have told me they too feel the same way–>

1. Don’t worry.
See, the thing is… I’m WAY past that.
2. It’s not a big surgery.
If my child is in surgery, it’s a big surgery to me. It’s a part of me I’ve entrusted to the Earth in a situation I cannot even try to control.
3. Been there. Done that.
While I am aware we are not reinventing the wheel here, routine surgery for one is not for another. Please, try to not one-up others.
4. I had that, and I was OK. (Or my child did)
I know lots of people with  lots of stories. I know kids that do GREAT under anesthesia. I know kids that have gone into comas from it, too. I know that when Addie wakes up she is a mess, her throat hurts, she’s raspy, she needs to be held and fights needed oxygen. I know that she gets ill, but refuses to drink or eat to help it. I know that she will be OK because we have a handpicked team, but brushing off a parent’s fear doesn’t make them feel better… or at least doesn’t work for me.
5. I know someone who died from that.
No joke. Someone told me they knew someone who had a child who died during a routine surgery- then they IM’d me their prayers. Ummmmmmm… I know things can happen, please don’t share those personal stories with me as I’m scheduling a routine surgery.
6. Try having (insert different procedure here).
This one really gets me. For some society has created a need for constant comparisons. Pissing contests. Who has it harder. I’ll tell you what, I know what hardship is. Maybe it is experience (I am still just a mom to one, and if you think back to those days, you too will remember your feelings were different then than they are now), maybe it’s age, or financial status, or location… or maybe, just maybe, it is how I feel as an individual. And it  is OK for me to feel the way I do. Maybe, someday, I will experience a similar hardship to you- but if you’re that person who feels like your life is harder, it just won’t matter… I’ll never be justified. This is, if you truly think of it, tragic for you.

And now that that’s off the table… I appreciate your kind words, your loving emails, texts, phone calls. So many are pulling for Addie to feel 100%, and for that I could not be more thankful. For those who go through major experimental surgeries, I pray for you everyday and I am thankful for the love and support offered to those families. When any family is going through unusual circumstances, the support system that surrounds them gives them the most strength. Thank you, Reader, for your strength.

lots of love,

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Filed under Achondroplasia, Community, Parenting/Family/Lifestyle

Marvelous Monday

And so… we are back. Many times I spent my Marvelous Mondays writing about what I am thankful for as friends or my surroundings, but today, I want to be thankful for opportunity. We don’t go on date nights, or celebrate with fancy dinners or outings, most of the time the idea of vacation seems intimidating and daunting for the sheer cost factor, but we are never short on opportunity.

Much thanks to our parents, who help us do the big things in life. We’d love to cruise the Bahamas, take a trip to Disney, see the Eiffel Tower… but more than that, we want to learn and support this amazing community around us- the reason I even began this blog… we want to be active members of the LPA as fully as we can be!

Last week, we took full advantage of our membership and joined hundreds of others in San Diego.

#aisforadelaide #marvelousmonday #lpaSD2014

I spent hours in workshops, gatherings, meetings and group events… to learn, to think, to take notes, to listen, to share, to dream, to wonder, to play! Addie participated in her first fashion show! I met SO many wonderful people I’d only ever spoken to online. Dave got to SIT DOWN! I spoke… in front of way more of a crowd than I was expecting, and though it was not recorded (to my knowledge), I will share the piece with you soon. We made friends family.

So, what is there to not be thankful for in life? I’m not thankful that Addie will have to undergo another MRI for more imaging. I’m not thankful that we still don’t know why she’s blacking out. I’m not thankful that there are so many questions and so few answers… in general. But who is counting? What this means is that there is more to see, more to know and more to learn. Advocating for our community, for our family and for Addie herself is never done. So let’s start this week in thanks… and get ready to work hard once again!

Happy Marvelous Monday, Reader!

love,

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