I talked with the neurologist’s office today and got great news:
Addie’s foramen magnum was at 8mm and went to 1cm, her C1 was at 6mm and is now at 8mm, and her ventricles are largely unchanged. Children with achondroplasia tend to have larger ventricles, but with the larger openings, her ventricles have room now and they are not changing. We will be going back this summer to recheck her and make a plan for any future follow-ups.
While the experience was not the best, this was Addie’s 3rd MRI, and knowing that this one came back looking beautiful brings my heart much peace.