The Internet

My little brother just did a report on why the internet and being so connected via the web is a bad thing. Up until this week, I agreed. Kids can’t speak to each other anymore. They have no way of expressing their feelings when they’re not behind a screen. They can’t spell and they don’t know the difference between than and then. But, the internet is a good thing, too.

I began this blog.
I made connections.

I asked questions.
I got answers.

I hit a wall.
I was presented with many ladders.
I am climbing.

We have an appointment at duPont in Delaware in October.
I asked a million questions to the clinic coordinator and she answered them all. Questions our geneticist here didn’t know the answers to.

I cannot express my gratitude to the mom who helped me get to the people I needed to get to, but I want her to know that it means the world to this family to have total strangers going to bat for you.

There are battles yet to be won and a few bridges that still need crossing- insurance is putting up a fight, claiming that there is a geneticist at Rhode Island Hospital she can see- but I’m hoping with a few letters and some education, I will be able to prove that Addie needs to see a specialist. Seeing this could be a long road of litigation ahead, it’s heartwarming to look back on the past few days and see that each time a barrier has presented itself, there is another parent out there who has been through the same experience and is so forth coming with their advice and story. Imagine a world where another person is able to answer a question you didn’t even know how to form. That’s my world- and all of the information and support I’m getting is made possible because of the internet.

While I agree, wholeheartedly, that kids need to get off the web and get outside, sometimes mom and dad  just need to sit in front of the computer and make the proverbial it happen. Thank you to all the moms and dads out there who made this, our it, happen.

There are battles yet to be won and a few bridges that still need crossing- insurance is putting up a fight, claiming that there is a genticist at Rhode Island Hospital she can see- but I’m hoping with a few letters and some education, I will be able to prove that Addie needs to see a specialist. Seeing this could be a long road of litigation ahead, it’s heartwarming to look back on the past few days and see that each time a barrier has presented itself, there is another parent out there who has been through the same experience and is so forth coming with their advice and story. Imagine a world where another person is able to answer a question you didn’t even know how to form. That’s my world- and all of the information and support I’m getting is made possible because of the internet.