Our story began in Providence, RI. It was expected and not expected all at one in an experience that can be described only as: what just happened? It was, all the same, perfect.
On April 17, 2012 a daughter was born! Adelaide Eileen Martinka came into this world after over 36 hours of labor weighing 7 pounds, 7 ounces and 18 inches long.
June 22, 2012 during an unrelated hospitalization, Addie was diagnosed with Achondroplasia, the most common type of dwarfism caused by a mutation in the FGFR3 gene. She will, most likely, be about 4 feet tall.
This is our story, which started out about one and has turned into two…
Chelley, Addie and Dave Martinka
Who we are:
I am a Philadelphia-native, while Dave is a Rhode Islander. We both love New England for its seasons, sports and amazing food and travel! Our family of four is so happy to finally be in a beautiful home in the Boston suburbs. We’re parents to Adelaide Eileen and Camille Thea, advocating for dwarfism awareness, and the disability community.
As a Beachbody Coach, I love all things fitness and nutrition, and is committed to a lifestyle of health and wellness. Dave is a computer and techie nerd, who loves open source operating systems, new gear and gadgets, and cooking with a good craft beer in hand. We believe strongly in parent educating for the best possible birth outcome, loving pregnancy, doulas, breast feeding, baby wearing, cloth diapers… and red wine! You’ll find more lighthearted pieces, too, like favorite recipes, talk about travel and beauty, and tips to making life easier!
As a Boston lifestyle blogger, my goal is to share how normal life is in our little suburb, even for families with special needs or disabled children, and we invite you to join us as we navigate our way!
Are you ready to know more about dwarfism? Start here, with Adelaide Has Achondroplasia. This is a safe place to ask questions, look for answers on your own, or just take the ride with us. Welcome.
