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Achondroplasia

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Fashion Trends~Uniquely, customized #microfashion

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Thank you to NoNi [made with love] for the beautiful dress to review!

I’ve been asked a lot about where we get clothes for Addie, and tips on the right fit. Truthfully, I say shop everywhere with an open mind. We just found super cute shoes at BJ’s this past weekend for $9.99- and they fit perfectly. Knowing that children with achondroplasia often have larger heads, possibly bowed legs, and a larger bum can make shopping less than satisfying… but as a woman, shopping can be daunting regardless of height.

Custom #fashion for kids. #microfashion

That being said, when you find something that works, grab more than one! At age 3, cuffing pants is cute and rolling sleeves doesn’t bother her, but iron-on hem tape is one of the ways I’ve customized clothes for Addie, ended the look of the roll, and I know that I can take the hem out easily for her sister, or to pass on to friends. I do try to buy longer and take up, because short pants, shirts and sleeves are just plain uncomfortable… and unflattering. Hi waters don’t work on anyone, even really cute toddlers. I like Addie to know that she’s like her peers, so we offer her the same fashion choices and do the work to get the fit correct for her. I’ve found that when she’s comfortable and likes her clothes, she feels better, and I feel better that she doesn’t have to yank, pull or trip over her clothes.

And yes, comparing oneself to others starts young.

Custom #fashion for kids. #microfashion

That being said, there are many boutique-y items that are super adorable, but churned out by the dozen and so complex in their accouterments (lace, banding, etc.) that I cannot alter them, which often leaves me hunting around for that one special piece… I like to call it our “season piece”. Like the one new sweater I get myself a year, or those boots you work your whole Fall wardrobe around, getting the girls one awesome item is fun for us. This Fall, I opted to have something made for Addie:

Custom #fashion for kids. #microfashion

NoNi [made with love] is a small business run by a Rhode Island mama of 2 sweet dudes. We met during a Rock a Baby class… me, totally enamored with her boys’ clothes (and some pieces she’s made for herself!). All of her fabrics are picked for their feel, durability, unique patterns, and (obviously) adorableness!

Custom #fashion for kids. #microfashion

The best part is that the bodice of Addie’s dress is a 3T, perfect for her torso, and the sleeves are a 2T. We do not have to roll the sleeves. This may seem like “not a big deal”, but I teared up seeing my girlie put on an article of clothing that didn’t need a stitch, tuck or pin to fit. After 3 hours of playing in the leaves, I asked Addie if she wanted to put some pants on for warmth. “No mom. I’m just so comfy in my new dress,” she said.

That was enough for me.

Custom #fashion for kids. #microfashion

Adelaide’s form of dwarfism, achondroplasia, is marked by an average size torso and short limbs, more specifically, the humerus and femur. Achondroplasia is, in 80% of cases, a spontaneous genetic mutation of the FGFR3 gene which provides instructions for making a protein that is involved in the development and maintenance of bone and brain tissue. These mutations cause the FGFR3 protein to be overly active, which interferes with skeletal development… basically, Addie’s body works TOO well! The growth of long bones by ossification of cartilage is slowed, in fact achondroplasia literally means “without cartilage formation”. Also a common trait are bowed legs, or genu varum. For many kids, this can make finding clothes a bit harder. Where denim is supposed to bend is not where the knees fit into pants, shirt sleeves are long and rolling them can be frustrating with smaller hands. Truthfully, keeping up with rolled sleeves is a bit of a task for Addie and myself!

Everything Addie wears will not be custom, but I know that when I want something to be super special, NoNi [made with love] can make just what we need. The perfect blend of finery and fun, all of the items are made with such care, it’s like wrapping your babe in a bit of mother’s love.

Custom #fashion for kids. #microfashion

If you’re local to New England, stop by Craftopia, and check out NoNi [made with love], or head to Facebook and check out more!

Custom #fashion for kids. #microfashion

I’m so in love with finding new fashion trends for the girls and myself, so I added a few awesome spots for you to check out, too!

Sweet ‘lil You’s awesome #MicrofashionMonday post HERE, with the cutest in poncho fashion! (Yes, Millie has been known to rock #6.

Loving BabyStylista’s back-to-school post HERE! Great tips for dressing preschoolers for school!

And from Mom Generations, How to Style Fall Boots has me excited to test out some new trends for myself!

* This post contains affiliate links. If you make a purchase from one of these links, I may or may not receive a small commission. The link does not affect the price you pay. All funds are used to keep this site going. For more information, please read my DISCLOSURE. *

Filed Under: Clients, Dwarfism, Lifestyle Tagged With: , , , , , ,

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Comments

  24. I love these outfits. The colors are vibrant and the styles are cute. It is definitely nice to not have to roll up sleeves and pant legs!

    Reply

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