Ahhh… Monday. I’ve actually been dreading this Monday, afraid of it- if you will.
Today Addie heads to Hasbro Children’s Hospital for her MRI.
A lot of readers have asked me why I do not write about dwarfism more, and the simple answer is: because that is not all there is in our lives. Neither Adelaide, nor the Martinka family are defined by the attributes of achondroplasia, and as such, I refuse to let my writing (and my mind) be consumed by the diagnosis. On the plus side, there is a lot of information here- as well as in the blog roll- which I encourage readers to check out! All charts are updated and a great accompaniment to your regular pediatrician’s repertoire of monitoring your child, and there are different categories for other information, including one specifically about achondroplasia. If you’re looking for something specific, try the search box!
But, I find myself here. Wanting to embrace the week, but fearing its start. Addie is due for an MRI at 1pm. This means the usual things for children of such an age getting an MRI- no food for 6 hours, sedation… oh yeah. Sedation. Due to the complications involved with achondroplasia, namely the compression that is apparent in all patients (the severity is what differs), Addie has a special team and guidelines to her being under. I am thankful that we have such an awesome team behind us, but I am always fearing the unknown- especially when her previous experience with anesthesia was not good. CONSIDERATIONS FOR ANESTHESIA DOCUMENT.
As I’ve mentioned before, I want to share information on this blog, but I do not want to delve into all of Adelaide’s medical history. It’s entirety to share is her choice… but I do want to educate. So, I will share what’s been happening these past few months.
Addie has fallen a total of 6 times, and been unable to catch herself. Each time she has fallen (backwards), she’s landed squarely on the back of her head… after which her eyes roll, she goes limp and doesn’t breathe for a time of 5 to 10 seconds. After these episodes, she’s bounced back pretty well that day, with no walking or pupillary issues. But… she’s blacking out. Cold. Six times. This has more than a few of her doctors worried, and before she goes under for another set of tubes and adenoid removal, we need to confirm there isn’t a deeper issue.
Thus, an MRI.
This Monday, I ask for your good thoughts, prayers, and virtual hugs… because while I know Addie is strong enough to handle anything, I’m not sure I am.
To all the mamas and papas before me who have battled more than I could imagine, you give me strength. Thank you for your love and support- through the major, the minor, and everything in between.
But… you didn’t think I would leave you there, did you?! It’s Monday! Marvelous Monday! There is too much to celebrate in life, and this week I am more than thankful for the love and support I have, but also the opportunities. My hubby is amazing, and his hard work has afforded me the opportunity to grow as a writer and mother… and athlete. I was recently accepted into the Fit For Two Ambassadors program- which I practically begged for (really), and just in time for their awesome Instagram campaign- beginning today!
For Two Fitness is a favorite of mine for so many reasons, including the company’s commitment to moms. Whether you’re a runner, cyclist, yogi, dancer, lifter, casual gym visitor, total gym rat… or just get into the groove when you can, the products offered will give you confidence and comfort in all of your workouts. The tops are made to move with you and your babe and the bottoms to cover everything, but give you movement… both pre and post baby. I love that the company is family-owned and operated- and think all new mamas deserve the love they have for their customers. So… what was all that about a giveaway?
From today until Friday, when you post the image below on Instagram with the hashtag #fortwofitnessgift and mention @fortwofitness you’re entered to be the one lucky Instagrammer who will win a $100 gift card to For Two Fitness – the very best in maternity activewear! Bonus points if you share what your For Two fave product is… mine? Training for Two racerback tank… a must for ALL activities! Check out my IG profile @martinkadeluxe and capture the image there, too!
Don’t forget to enter yourself in this awesome contest- there are products for mamas-to-be and new mamas- and even a few pieces for in between moments! Good luck, Reader!
I hope you have a beautiful week… starting with this Marvelous Monday we have all been blessed to have!
xo
Best of luck to Addie today. I know you must be beside yourself with worry, but I am sure she is going to be just fine <3
Thank you, Robin!
martinkadelux recently posted…Marvelous Monday
Prayers for Addie and Mommy&Daddy too! It so hard to watch your child go through things like this.
Thank you!
martinkadelux recently posted…Marvelous Monday
Well I hope your appointment goes well and is not too stressful. Good Luck and the best to Addie and you!
Carlee C recently posted…Paying With ISIS Wallet! #PaySmarter Shopping Just Got Easier At Popular Retailers!
Thank you, Carlee!
martinkadelux recently posted…Marvelous Monday
I love your Marvelous Monday’s post – they are so informative. Good luck with this.
kim recently posted…A Super Cool List of Outdoor Playdate Activities for PreSchool #ClaritinMomCrew
Thank you for reading them! 🙂
martinkadelux recently posted…Marvelous Monday
Sounds like the health issues with Addie are stressful but hoping things go smoothly at the MRI.
Only sometimes… she’s such a blessing not too much gets us stressed! Thanks for the well wishes!! <3
martinkadelux recently posted…Marvelous Monday
Good luck at Hasbro today. Those blackouts have got to be terrifying.
I agree about sharing, but not making our children’s issues central to our blogging. We are there to assist them in their journeys, but the journey is theirs, we are just blessed with experiencing it with them.
Robin {Mom Foodie} recently posted…Skinny Coconut-Berry Watercolor Smoothie #LoveMySilk
Yes, exactly Robin!
martinkadelux recently posted…Marvelous Monday
Thoughts and prayers are with you and your family today! :Hugs:
Lisa recently posted…Hot ABC Shows Headed to DVD this Fall
Thank you!
martinkadelux recently posted…Marvelous Monday
Good luck! Thoughts are with your family today and hope everything goes well.
Elizabeth @ Being MVP recently posted…Oubly.com Stationary + #Giveaway
Thank you so much, Elizabeth!
martinkadelux recently posted…Marvelous Monday
Good luck hun! I am so sorry you have to go through all of this.
april recently posted…How to get Smooth Summer Legs
I would do anything for my sweet lady… I”m just blessed that she is so much stronger than I am!
martinkadelux recently posted…Marvelous Monday
Praying that God gives you peace as you are at your appointment. Please keep us updated.
Mama to 5 BLessings recently posted…4th of July Tin Can Windsock Kids Craft
Thank you! Things went… well… they went. The important thing is that 5 hours later we were sent home and she’s finally resting comfortably!
martinkadelux recently posted…Marvelous Monday
I know how scary hospitals and tests can be so lots of love and light for you and Addie! Hopefully the MRI will help to tell you what’s causing those black outs.
Kayla @ TheEclecticElement recently posted…Fate, VIP, & Wayland Kisses: WingDing 2014
Fingers crossed!
martinkadelux recently posted…Marvelous Monday
Wow, that sounds worrisome, for sure. My thoughts are with you and your family. Hopefully, it’s one of those things that appears to be more serious than it is. Good luck!
Jennifer recently posted…Do: More in the Summer Heat with Degree #CheerMore Giveaway
I totally agree! Thank you, Jennifer!
martinkadelux recently posted…Marvelous Monday
She seems like such a sweetheart.. Thank you for sharing your story.
Thank you for reading <3
martinkadelux recently posted…Marvelous Monday
Best of luck to Addie today! those blackouts would have any parent quite nervous. I hope they can find answers and you will be able to help her through to where she doesn’t get hurt by them.
Amber Edwards recently posted…Peanut Butter Muffins Recipe; Family friendly Breakfast Recipe
Thank you, Amber. I hope we get a reading before the end of the week, for sure!
martinkadelux recently posted…Marvelous Monday
How tough that is, but I bet talking about it and finding others in similar situations really helps. My prayers are with you all, hope the testing goes well.
Tammi @ My Organized Chaos recently posted…Summer Infant Baby Zoom WiFi Video Monitor
Thank you, Tammi!
martinkadelux recently posted…Marvelous Monday
Sending prayers your way! My daughter had a seizure once and I know how scary it can be to be a mom watching those tests done, wishing you could just do it for them. Hang in there!
AImee Smith recently posted…Southwest Chicken Ceasar Salad Recipe
Oh Aimee, that is so scary! We are doing much better… now that the MRI is over! That’s for sure.
martinkadelux recently posted…Marvelous Monday
Best of luck to you and your family! Health issues are so stressful, especially with kiddos!
Meagan recently posted…Southwest Chicken Ceasar Salad Recipe
So true, Meagan!
martinkadelux recently posted…Marvelous Monday
That tee is too cute. I’m expecting a son and would love to have that top to wear while I’m pregnant.
Janel (A Mom’s Take) recently posted…Southwest Chicken Ceasar Salad Recipe
Ooooh!!!! Next week I will have a special discount code for you!
martinkadelux recently posted…Marvelous Monday
First of all, I want you to know that I really respect your attitude about Addie. She deserves privacy and respect and that’s what you’re giving her, along with love, of course. Second of all, I love the For Two fitness outfit.
Thank you, Katy. I do want to educate… but not always educate too much into her personal life!
And the tops are awesome, pants are perfect and great for pre and post baby wear!!! 🙂
martinkadelux recently posted…Marvelous Monday
I am definitely sending good thoughts to you and your family. And I am with you. I don’t write a lot about all the different health issues in our family because we are so much more.
Dawn recently posted…From Achy Joints To Playing In The Yard: Hilo’s Story #sponsored #HillsPet
Amen, Dawn! Thank you for your good vibes- we felt all the love today and feel so blessed.
martinkadelux recently posted…Marvelous Monday
Praying for Addie! I’m glad you have a good team of doctors, I know that has played a huge part in my daughters healthcare!
It’s crucial, for sure!
martinkadelux recently posted…Marvelous Monday
I hope everything went well today. Thinking of you and your family. Thank you for sharing your journey with us.
Ann Bacciaglia recently posted…KickAss GiveAway Linky June 2014
Thank you, Ann. It was interesting and scary… but everything is OK and my angel is home in bed. Finally!
martinkadelux recently posted…Marvelous Monday
Great strength and resolve Mama! With that attitude, you and your family will go far. Best of luck at the doc!
Brett Martin recently posted…$100 Target Giveaway
Thank you, Brett!
martinkadelux recently posted…Marvelous Monday
Oh my goodness, sounds like you are going through so much, yet it is Marvelous Monday and you are still so grateful for the support around you. Hugs!
Without all the love from friends and family, near and far, I know this day would have been anything but marvelous… but I have a groggy, scratchy throat warrior in bed recovering better and better. And for that… it’s been a damn marvelous day, for sure! 🙂
martinkadelux recently posted…Marvelous Monday
Good luck and everyday we are gifted with is definitely a blessing.
So, so true.
martinkadelux recently posted…Marvelous Monday
Good thoughts for her and the MRI. Surgery is always a scary thing
tammileetips recently posted…Key West Butterfly Garden & Nature Conservatory
Thank you!
martinkadelux recently posted…Calm-a-Mama… or anyone!
I see from some of the comments that things went well today – thank goodness for that! Prayers for continued health for your daughter!
And… wish I’d known about the Fit for Two brand when I was prego!! 🙂
JulieK recently posted…Kid-Friendly Dining at Bonefish Grill (Evergreen Walk, CT)
Thank you, Julie!
martinkadelux recently posted…Calm-a-Mama… or anyone!
I would love to win the gift card and give it to my sister. I should share this post with her, thanks!
Sandra recently posted…Mississippi Mud Pie No Bake Cheesecake
Yes, do! And you can enter on IG and win it for her!
martinkadelux recently posted…Calm-a-Mama… or anyone!
My thoughts go out to you and your daughter. My daughter just went through surgery and I was terrified and her issue was minor.
Debi recently posted…HOT New Coupons 6/24, Tide, Marshmallows & More!
When it comes to our babies and surgery, I never say it’s minor. I wish your daughter a quick recovery <3 <3 (And you, too!)
martinkadelux recently posted…Calm-a-Mama… or anyone!
I hope all went okay for you both yesterday. I can’t even imagine what you were feeling, let alone how scared Addie must have been. Prayers and well wishes that you get some answers soon. Your daughter has such a strong spirit!
Courtney Buteau recently posted…Summer reading picks for preschoolers
Thank you, Courtney! The news wasn’t great, but Addie’s courage is what makes us strong.
martinkadelux recently posted…Calm-a-Mama… or anyone!
Hoping the appointment went well! Congrats on your new ambassadorship!
Thank you, Racquel!
martinkadelux recently posted…Calm-a-Mama… or anyone!
prayers for you and your entire family, you guys have been through a lot for sure.
Thank you, Katrina!
martinkadelux recently posted…Calm-a-Mama… or anyone!
I hope all went with your sweet girl for the MRI! That’s a pretty neat instagram contest, by the way.
Liz Mays recently posted…Summertime Sandwiches – Zesty Italian Hero
Thank you…and it is awesome! (I hope I win for myself!)
martinkadelux recently posted…Calm-a-Mama… or anyone!