And so… we are back. Many times I spent my Marvelous Mondays writing about what I am thankful for as friends or my surroundings, but today, I want to be thankful for opportunity. We don’t go on date nights, or celebrate with fancy dinners or outings, most of the time the idea of vacation seems intimidating and daunting for the sheer cost factor, but we are never short on opportunity.
Much thanks to our parents, who help us do the big things in life. We’d love to cruise the Bahamas, take a trip to Disney, see the Eiffel Tower… but more than that, we want to learn and support this amazing community around us- the reason I even began this blog… we want to be active members of the LPA as fully as we can be!
Last week, we took full advantage of our membership and joined hundreds of others in San Diego.
I spent hours in workshops, gatherings, meetings and group events… to learn, to think, to take notes, to listen, to share, to dream, to wonder, to play! Addie participated in her first fashion show! I met SO many wonderful people I’d only ever spoken to online. Dave got to SIT DOWN! I spoke… in front of way more of a crowd than I was expecting, and though it was not recorded (to my knowledge), I will share the piece with you soon. We made friends family.
So, what is there to not be thankful for in life? I’m not thankful that Addie will have to undergo another MRI for more imaging. I’m not thankful that we still don’t know why she’s blacking out. I’m not thankful that there are so many questions and so few answers… in general. But who is counting? What this means is that there is more to see, more to know and more to learn. Advocating for our community, for our family and for Addie herself is never done. So let’s start this week in thanks… and get ready to work hard once again!
Happy Marvelous Monday, Reader!
Nolie says
Love reading about everything you are thankful for.
Nolie recently posted…8 Tips to a Better Nights Sleep
martinkadelux says
Thank you!
martinkadelux recently posted…On being a special needs parent…
Meagan says
What a brave little girl (and mommy). I hope you find your answers!
Meagan recently posted…Designer Clothes for Toddlers
martinkadelux says
Thank you, Meagan. I hope so, too!
martinkadelux recently posted…On being a special needs parent…
Robin (Masshole Mommy) says
I was just in SD in April and I was following along on Instagram with your trip and it made me miss it SO bad. My sister & brother in law live out there and my hubby & I plan to move there once the kids are all in college.
martinkadelux says
I WISH we had family that lived in SD! I loved it there!!
martinkadelux recently posted…On being a special needs parent…
Tammi @ My Organized Chaos says
Small blessings, your heart is in a good place. Hoping for some great news soon!!
Tammi @ My Organized Chaos recently posted…Hyatt Place Los Angeles – LAX El Segundo
martinkadelux says
Yes! Thank you!
martinkadelux recently posted…On being a special needs parent…
Shauna says
Oh how scary… I can’t imagine… I look forward to hearing that everything will be okay!
martinkadelux says
Thank you, Shauna.
martinkadelux recently posted…On being a special needs parent…
Laura (Lauras Little House Tips) says
I hope you find your answers soon. She is just precious. Thanks for sharing I love your images. 🙂
Laura (Lauras Little House Tips) recently posted…Lemon Peel Infused Facial Scrub – DIY
martinkadelux says
Thank you, Laura. I hope we get some better information soon!
martinkadelux recently posted…On being a special needs parent…
Angela S says
I am so glad you found such support and fun. It’s nice to be part of a community, even if it’s a hardship that brings all together.
martinkadelux says
I am glad that it is more than hardship that gives us community… but it is so good to have the support for the times that are bad.
martinkadelux recently posted…On being a special needs parent…
Amber Edwards says
What a great positive attitude! It is always easier to face life’s challenges with a positive and grateful attitude!
Amber Edwards recently posted…One of a Kind Dr Pepper Date Night Kit for a last minute Backyard Bash
martinkadelux says
I’ve found that to be true… only took me 29 years!
martinkadelux recently posted…On being a special needs parent…
Ellen Christian says
What a great post. I will keep you both in my prayers.
Ellen Christian recently posted…Summer Sun Safety Tips
martinkadelux says
Thank you, Ellen.
martinkadelux recently posted…On being a special needs parent…
Sarah @ Must Have Mom says
Thank you soo much for sharing your family’s adventure with us. I love that you had this opportunity, and can’t wait to see the bit of you speaking!
martinkadelux says
Thank you for following <3
martinkadelux recently posted…On being a special needs parent…
Marina @ Mommy Snippets says
You have a beautiful family, and I’m soo glad you were able to have this experience! Keeping your family in my daily prayers.
Marina @ Mommy Snippets recently posted…Healthy Popcorn Trail Mix for Movie Night {#StreamTeam}
martinkadelux says
Thank you for your prayers, Marina!
martinkadelux recently posted…On being a special needs parent…
Jennifer says
I think it’s important to remember to be thankful for the good things we have in our lives. Too many times we focus on the negative, never seeing the positives.
Jennifer recently posted…Nescafe Dolce Gusto Genio Coffee Maker Sweepstakes
martinkadelux says
So true!
martinkadelux recently posted…On being a special needs parent…
Dawn says
Those are two ADORABLE girls. =D Love this post. It’s so important to remember to be thankful for the good things in our lives.
Dawn recently posted…Try New Degree Women MOTIONSENSE with a Coupon & a Giveaway
martinkadelux says
It really is!
martinkadelux recently posted…On being a special needs parent…
Amy Desrosiers says
Addie is such a precious and adorable little girl! I love you sense of appreciation for life-keep it up momma! <3
Amy Desrosiers recently posted…DIY Kid’s Good Behavior Chart Craft + Share a Coke Reward
martinkadelux says
Thank you, Amy! I hope that I pass this onto Addie… even on the yuckiest of days.
martinkadelux recently posted…On being a special needs parent…
Mama to 5 BLessings says
Aw what a cute photo, very sweet memory!
Mama to 5 BLessings recently posted…Chocolate Confetti Cookies
martinkadelux says
🙂
martinkadelux recently posted…On being a special needs parent…
CrazyMom a/k/a Melanie says
awww loved your post; thanks for sharing your memories with us.. she is a doll
CrazyMom a/k/a Melanie recently posted…Dinner on the Go ~ Save anywhere, anytime, anyplace with Restaurant.com #ReviewCrew
martinkadelux says
Thank you!
martinkadelux recently posted…On being a special needs parent…
Dede says
Good for you for being an advocate for your daughter! Hugs to you, mama.
Dede recently posted…#FlashYourLash and other weekend fun
martinkadelux says
Thank you, Dede. Hugs appreciated <3
martinkadelux recently posted…On being a special needs parent…
Pam says
Being an advocate for your sick child is so hard, but so rewarding when you finally figure out what’s wrong and how you can help them.
martinkadelux says
Truly, Pam.
martinkadelux recently posted…On being a special needs parent…
Janel (A Mom's Take) says
Praying for Addie. Hope all goes well with her MRI. I hope you have a nice week, and happy Marvelous Monday to you 🙂
Janel (A Mom’s Take) recently posted…The Voice Tour & $1000 Giveaway!
martinkadelux says
Thank you for your prayers! I hope you had a wonderful week!
martinkadelux recently posted…On being a special needs parent…
Jenn says
You have such a great attitude!! Fingers crossed!
And have a marvelous Monday yourself!!
Jenn recently posted…Celebrate Summer & Be Prepared with a Puracyn® First Aid Kit #PuracynFirst
martinkadelux says
Thank you, Jenn!
martinkadelux recently posted…On being a special needs parent…
Liz Mays says
I love how you said you made family! That is a beautiful thing!
Liz Mays recently posted…What Makes You Sparkle? #SparkleWithDasani
martinkadelux says
Thank you, Liz. I think creating your own little subculture of family is such a beautiful experience!
martinkadelux recently posted…On being a special needs parent…
Toni says
Praying for your sweet girl. Hope everything goes well and y’all get some answers.
Toni recently posted…Easy Movie Night Snack and Family Fun With Big G Cereal Movies #BigGCerealMovies #Ad
martinkadelux says
Thank you, Toni! I hope we have some answers soon, too!
martinkadelux recently posted…On being a special needs parent…
SHELLEY R ZUREK says
Sounds like your wonderful daughter has two amazing advocates. She is blessed.
SHELLEY R ZUREK recently posted…5 Light Bladder Leakage Solutions, Helping You With Your Triggers!
martinkadelux says
I think she is… and we are, as her parents, too!
martinkadelux recently posted…On being a special needs parent…
Aimee Smith says
This is a great idea for a post. I think reminding myself what I have makes the things I don’t have seem more bare able. Hope you find some answers for your little one.
Aimee Smith recently posted…The Voice Tour & $1000 Giveaway!
martinkadelux says
So true- it is hard to say we should be thankful when there’s so much out there we see we don’t have, but I know the effort to see deeper has truly changed my outlook on life.
martinkadelux recently posted…On being a special needs parent…