achondroplasia Archives - Page 2 of 16 - A is for Adelaide and...

Are you sure? Divulging information about your child’s disability.

People ask me a lot of pretty seemingly harmless, basic questions. All the time. Sometimes the questions go on and [Continue Reading]

Dwarfism is something that I go back and forth in my head with the this doesn’t define my life/this defines [Continue Reading]

Hello and happy Marvelous Monday! We’ve been battling a bit of a weekend cold (thanks warm weather + snow + [Continue Reading]

Victim Blame. Stop it. Stop it now. Stop blaming the victim. Victim blame is an old fad that became the [Continue Reading]

To Lifespan Partner, operators of Rhode Island and Hasbro Children’s hospitals. Thank you. When we came in for a pediatric [Continue Reading]

The commitment is real! I cannot believe we’re heading into March- and week 8 of #52WeeksA4A is coming to a [Continue Reading]

I talked with the neurologist’s office today and got great news: Addie’s foramen magnum was at 8mm and went to [Continue Reading]

Note (2 days past-publish): When this was written, I was passionate, heated and curious as to how SO many things [Continue Reading]

I love getting my LPA Today! magazine in the mail! I am honored that a submission I made was printed! [Continue Reading]

Some of you may know that we head to Delaware’s AI DuPont Hospital for Children every 6(ish) months for Addie’s [Continue Reading]

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