Hi. My name is Patty Weltin. I am the Executive Director/Founder of the Rare Disease United Foundation. I am also a rare disease mom. My daughter, Olivia, has Hypermelanosis of Ito. I saw an article in Rhode Island Magazine about your blog. We put out a newsletter every month that showcases a different disease. I was wondering if you would care to share Adelaide\’s story in our newsletter. Also, every year we have a World Rare Disease Day event. This year it will be at the Crowne Plaza in Warwick on March 2nd from 2pm – 6pm. I look forward to hearing from you. Thanks.
Best,
Patty
AUTHOR: Patty Weltin
AUTHOR EMAIL: Pweltin@rarediseaseunited.org
AUTHOR URL: http://www.rarediseaseunited.org
SUBJECT: [A is for Adelaide and…] Contact
IP: 72.87.85.43
Array
(
[Name] => Patty Weltin
[Email] => Pweltin@rarediseaseunited.org
[Website] => www.rarediseaseunited.org
[Comment] => Hi. My name is Patty Weltin. I am the Executive Director/Founder of the Rare Disease United Foundation. I am also a rare disease mom. My daughter, Olivia, has Hypermelanosis of Ito. I saw an article in Rhode Island Magazine about your blog. We put out a newsletter every month that showcases a different disease. I was wondering if you would care to share Adelaide\’s story in our newsletter. Also, every year we have a World Rare Disease Day event. This year it will be at the Crowne Plaza in Warwick on March 2nd from 2pm – 6pm. I look forward to hearing from you. Thanks.
Best,
Patty
)
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