It’s Monday again… and with a heavy heart, I don’t feel very marvelous. With October being Dwarfism Awareness Month, I feel it’s only fair to educate about dwarfism as a whole, and not just the most common form (achondroplasia)- because as many want to say, “I’m just small,”… that doesn’t apply to everyone.
On October 7th, our community lost a young member. Christian, just 3 1/2, succumbed to his lethal form of dwarfism, Thanatophoric Dysplasia. Many children born with this form of dwarfism pass after birth, but Christian was a fighter. Not only is his passing too soon, but his baby sister was just born earlier in the month. While one child is born, another will be buried.
I cannot imagine the heartbreak.
So, I wanted to educate. Because Dwarfism Awareness Month is more than sweet stories about kids who struggle against some odds and make it out as successful doctors and business owners… it’s about the on-going battle for accessibility rights, equality in school and the workplace, and the need for more research so we can save the babies that need to be saved. It’s not about a cure… it’s about understanding. It’s being aware that people, all people, deserve to have options in healthcare and treatment.
Be aware, please. Educate yourself and others.
For more about Christian, or to help his family in this tragic time, please visit THIS website. Thank you.
May you have a blessed week, Reader.