I am your mother, and by all means the definition of such a hefty title includes protecting you. Amongst my other duties… love, feed, house, clothe, I take the job of protecting you seriously. You are my first born, grown in me on the heels of a lost pregnancy. Everything I ever dreamed of placed on your shoulders. And you are perfection. Not because you won’t make mistakes, but because we will make mistakes with each other. As my involuntary muscles provide my lungs the power to inflate and compress, my title incites protection of you inevitably. Without effort.
But I will also be honest with you, my love.
You are disabled.
Achondroplasia is in fact, a disability.
Don’t shudder when you hear it or say it. It’s just a part of you. Achondroplasia. Dwarfism. Disability. These things are not you. They are a part of you. YOU are you. All of you. So hold your head up high, lady. Because you are amazing. You are stunning. You are brave. You are smart.
And all that you are… it has nothing to do with your disability. It’s not because you are inspirational. It’s not because you are different.
It’s because you are you.
And because you are you. Because I (we, I love your Daddy very much) made you. Because things happen in a different way for different people in life. You may be denied certain things in your life. Things you deserve.
The biggest one, at the forefront of my mind: care.
Your Dad and I work hard. Every day. And we provide. We also live in, are natural born citizens of, a country that claims to be the greatest country in the world. But we, as said country, do not always care for our citizens (don’t even get me started on what happens if you’re not a citizen), and you deserve care.
Not because you are disabled, but because in order to be the greatest, we need to be the greatest.
We need to hold up all of our people (citizen or not) and you are a people. You are my people. You deserve care.
Medical care is yours to have, Adelaide. And I will fight, every single day, for that.
We love you, Adelaide. Not everyone will- this is not because of you- but because of them. Even without the love of the world, you deserve care.
We fight for insurance as though that is a guarantee for anything, but we have insurance and thousands in debt. I can promise you, insurance is not what you need, but care. And we will get that for you. We will provide that for you.
Because you deserve care.
There are certain flaws in the system, things even I am unsure how to “fix”, but I know there must be a way to debug. We, your parents, are the tech generation. Debugging is what we do. This flawed system is nothing but the beginning of something great.
This is not democratic or republican, this is human. We are on the brink of an election that could change our nation- change for a better future. May that come to fruition for you, and everyone else. Because we all deserve care.