I began this blog in the summer of 2012. It’s full name is not A is for Adelaide, the full name of this blog is A is for Adelaide and Achondroplasia. But I love that it’s blossomed into so much more. There is a lot of information in the archives, and I hope to dig some of that out and reprint it so that new readers can learn, but, in truth, this blog has grown into more because we are more.
There’s a lot to be said about dwarfism, and specifically achondroplasia, which is the most common form, but it’s more. There is more. There are the family moments, good recipes, crafts and projects, opinions, life lessons, stories, products, advocacy work. It’s all intertwined. We are just a family.
The most important part of A is for Adelaide and Achondroplasia isn’t the achondroplasia, it’s the Adelaide (and also the Camille Thea!!!). It’s showing that we are a typical family. I don’t want to fight to be seen as average, everyday people. I don’t want to have to prove it. Quite simply, I just want to live it.
So while many are finding a diagnosis scary and learning all there is to know, please remember that normal, average and everyday are relative. We go to classes, do crafts, have nap time and run around like chickens with our heads cut off just to get out the door. Addie has fits about being told no and Millie wants to eat every hour on the hour. We try to have dinner together every night. I struggle to get the girls in the bath more than twice a week, and myself, too! Our cars need oil changes and our mortgage arrives at the same time each month. Addie also sees an ENT, neurologist, neurosurgeon, geneticist, orthopedist, physical therapist, got kicked out of speech therapy for never being quiet, and of course a pediatrician and dentist. These are just things we do. There are a few more steps in each day, sure, but they’re not steps that keep us behind- just on our toes.
It’s a wild ride. It’s life. It’s a beautiful one, at that.